tag:blogger.com,1999:blog-8121963203914214070.post1476111326456179150..comments2023-12-26T03:00:35.586-07:00Comments on Run, Sickboy, Run - Cystic Fibrosis and Exercise: Treatment TimeAnonymoushttp://www.blogger.com/profile/06849674714471543078noreply@blogger.comBlogger19125tag:blogger.com,1999:blog-8121963203914214070.post-12941421696724582582010-03-15T14:52:47.767-07:002010-03-15T14:52:47.767-07:00My son usually watches t.v. or plays on the comput...My son usually watches t.v. or plays on the computer. He usually has the sound turned way up though! :) As you can imagine "breather time" is very loud in our house!Juliehttps://www.blogger.com/profile/04434380342943593408noreply@blogger.comtag:blogger.com,1999:blog-8121963203914214070.post-3043756621561902132010-03-15T11:34:01.382-07:002010-03-15T11:34:01.382-07:00My daughter is now nearly 12 and strangfe as it so...My daughter is now nearly 12 and strangfe as it sounds we enjoy physio time ......It's our time for the two of us to spend together and no one bothers us. It's suprissing how many little things she remebers to tell me while we do it and it definatly helps with toiugh times being able to rememebr little silly things she had said to me. I know one day I'll have to let someone else takeAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-8121963203914214070.post-15743864589392026262010-03-15T09:47:26.585-07:002010-03-15T09:47:26.585-07:00Sometimes my 15 month old son likes to cuddle up w...Sometimes my 15 month old son likes to cuddle up with me and my vest. Its makes him laugh and warms my heart. Other times I use the time to do nothing but read a book while my husband cleans the house:)Bret and Kari VZhttps://www.blogger.com/profile/13698643426775079650noreply@blogger.comtag:blogger.com,1999:blog-8121963203914214070.post-39585150444681199632009-09-15T18:34:58.592-07:002009-09-15T18:34:58.592-07:00I am usually on my computer during treatment time....I am usually on my computer during treatment time. Makes the time go faster for me. And I have the same compressor you do...use it for all my nebs too.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-8121963203914214070.post-29910910678635476622009-09-15T12:50:34.327-07:002009-09-15T12:50:34.327-07:00Hey Holly-
I use my compressor with every med tha...Hey Holly-<br /><br />I use my compressor with every med that I take. You have to adjust the psi for some, but it's all provided by the CFF website.<br /><br />Don't hesitate to contact me with any other questions...or if you need the psi recommendations!<br /><br />RonnieAnonymoushttps://www.blogger.com/profile/06849674714471543078noreply@blogger.comtag:blogger.com,1999:blog-8121963203914214070.post-16032106708093801802009-09-15T12:37:36.123-07:002009-09-15T12:37:36.123-07:00Hey Ronnie...
Do u use the air compressor with al...Hey Ronnie...<br /><br />Do u use the air compressor with all of the treatments...the albuterol and pulmozyme???Unknownhttps://www.blogger.com/profile/04777656870334835205noreply@blogger.comtag:blogger.com,1999:blog-8121963203914214070.post-37642578448743255702009-09-14T22:02:44.560-07:002009-09-14T22:02:44.560-07:00I don't do treatments now since transplant, ho...I don't do treatments now since transplant, however recently I've had to do the inhaled TOBI. Basically I will be on the computer while doing the TOBI (which takes about 20 minutes) or work on schoolwork. And that's basically what I did pre-transplant; I didn't use a vest, so I couldn't do them at the same time as the chest therapy. I think the vest is great for cutting down Kateyhttps://www.blogger.com/profile/11628086713110351792noreply@blogger.comtag:blogger.com,1999:blog-8121963203914214070.post-14206276186265300202009-09-14T21:48:23.579-07:002009-09-14T21:48:23.579-07:00Thanks for filling me (and others reading) in on w...Thanks for filling me (and others reading) in on what you all do!! We haven't blown out any speakers yet (Luckily - Ronnie would murder me if anything happened to his TV ;-) !!!)<br /><br />Denise- I'll have to give Bejewled blitz a try sometime.<br />Sara- the post's theme was a fortunate coincidence...hope you liked it.<br />Bryan- Ronnie and I have spent hundreds of hours (Mandihttps://www.blogger.com/profile/13772455294477644859noreply@blogger.comtag:blogger.com,1999:blog-8121963203914214070.post-55443068015550920412009-09-14T18:57:02.984-07:002009-09-14T18:57:02.984-07:00We call it "Treatment Time" as well. We ...We call it "Treatment Time" as well. We sing the theme to Tom & Jerry "nanana Tree-eat-ment time.." when we're getting ready then we make roads with Homemade playdough or watch funny Youtube vids :)Also, I have Hayden look at pics of other CF guys doing their treatmentspatti G.http://www.flickr.com/photos/pattisunshinenoreply@blogger.comtag:blogger.com,1999:blog-8121963203914214070.post-64018063849731950212009-09-14T18:54:32.135-07:002009-09-14T18:54:32.135-07:00OK...hold on. Skipbo?!?!? Dude I love that game. W...OK...hold on. Skipbo?!?!? Dude I love that game. Well, Jenny and I usually end up sitting down on the floor with Bryce while he watches his Baby Bulldog DVD. It's like a Baby Einstein, but it's all about the best place on earth- The University of Georgia! Bryce loves it. He is close to saying "Go Dawgs!" I will say it was pretty cool when he said, "foobaa" (that's Bryan Jonesnoreply@blogger.comtag:blogger.com,1999:blog-8121963203914214070.post-29663597034367701782009-09-14T18:12:20.120-07:002009-09-14T18:12:20.120-07:00I spent most of the time surfing the web or readin...I spent most of the time surfing the web or reading since they don't involve sound.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-8121963203914214070.post-10985604850911958112009-09-14T18:07:40.123-07:002009-09-14T18:07:40.123-07:00This post is absolutely wonderful. I wonder if I ...This post is absolutely wonderful. I wonder if I had anything to do with it? Haha.. well Ronnie / Mandi I'm still on it every day.. so THANK YOU! :)<br /><br />Sometimes everyone just needs a little pick me up. You guys were mine.Sarahttps://www.blogger.com/profile/10474506012858166787noreply@blogger.comtag:blogger.com,1999:blog-8121963203914214070.post-17602566531140884752009-09-14T17:39:35.658-07:002009-09-14T17:39:35.658-07:00Tv... Twitter... Reading .... Meditating... Movies...Tv... Twitter... Reading .... Meditating... Movies.... Or working!Marissanoreply@blogger.comtag:blogger.com,1999:blog-8121963203914214070.post-83177555318285144502009-09-14T15:26:14.823-07:002009-09-14T15:26:14.823-07:00I just veg out and watch TV. And yes I turn it way...I just veg out and watch TV. And yes I turn it way up it is so loud that now we have realized the speakers are blown so the sound quality is not good at all. We just use the tv for treatment time so not biggie and it is old anyway but I will have to be careful if we buy a new one, ha ha. I try to read sometimes but the bouncing of the vest is too difficult and I hold the neb with my hand so my Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-8121963203914214070.post-77649332658670580732009-09-14T13:47:54.143-07:002009-09-14T13:47:54.143-07:00I am usually watching something like Baby Einstein...I am usually watching something like Baby Einstein on the DVD player...It's the only thing that keeps Nathan happy.<br /><br />Treatments are a nuisance but I agree, it is time that I get to spend with Nathan, alone, alive, and breathing. <br /><br />Sometimes if he is being really good, I will try to hold neb with one hand and facebook/blog/twitter with the other hand.Anonymoushttps://www.blogger.com/profile/04083710190185453271noreply@blogger.comtag:blogger.com,1999:blog-8121963203914214070.post-23927677809074644082009-09-14T13:40:44.030-07:002009-09-14T13:40:44.030-07:00My son is only 4 months old, so we're still do...My son is only 4 months old, so we're still doing his CPT by hand. The first month we were doing it, he would be fine through about half of it, then the last few positions, he would get SO upset. I finally came up with putting Baby Einstein's on the laptop for him, so I could move the screen around easily no matter what position he's in. He still gets upset at times, but at least it&#Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-8121963203914214070.post-24058985236221003162009-09-14T09:52:05.502-07:002009-09-14T09:52:05.502-07:00Oh the days of "turn it up" are finally ...Oh the days of "turn it up" are finally long gone for us!! We have the E-flow and its silent...like 100% no sound!! We love it. Yall should look into it. It fits in my purse and is battery opperated also. That dont fix not having the vest but hand CPT or the cup serves the purpose =)Kelleehttps://www.blogger.com/profile/18375802334017681242noreply@blogger.comtag:blogger.com,1999:blog-8121963203914214070.post-6190728706636024042009-09-14T08:32:56.567-07:002009-09-14T08:32:56.567-07:00Have you tried bejewled blitz on facebook? Totally...Have you tried bejewled blitz on facebook? Totally addicting...no sound needed! I can, and have, killed hours playing.Denisehttps://www.blogger.com/profile/07202296893022308340noreply@blogger.comtag:blogger.com,1999:blog-8121963203914214070.post-37808833182870069772009-09-14T05:08:40.149-07:002009-09-14T05:08:40.149-07:00I cannot tell you how many speakers we have blown ...I cannot tell you how many speakers we have blown how because of my treatments! I should really get some wire head phones... thanks for the idea!<br /><br />I usually blog or watch movies. I watch a lot of movies. I'm afraid of turning the television up too loudly, so instead of actually having to really pay attention to a TV show, I'll just watch a movie I've already watched a half Katelynhttps://www.blogger.com/profile/02262160831487815067noreply@blogger.com