tag:blogger.com,1999:blog-8121963203914214070.post3057420774703353650..comments2023-12-26T03:00:35.586-07:00Comments on Run, Sickboy, Run - Cystic Fibrosis and Exercise: Clinical Trials for Cystic FibrosisAnonymoushttp://www.blogger.com/profile/06849674714471543078noreply@blogger.comBlogger6125tag:blogger.com,1999:blog-8121963203914214070.post-29192149994437805972009-07-21T13:22:54.347-07:002009-07-21T13:22:54.347-07:00I just got signed up to start the AzLi clinical tr...I just got signed up to start the AzLi clinical trial so I should be starting it within a couple of weeks. I will let everyone know how that goes as time goes on.Jenhttps://www.blogger.com/profile/00406895488412085461noreply@blogger.comtag:blogger.com,1999:blog-8121963203914214070.post-72831537392688206962009-07-18T21:38:20.141-07:002009-07-18T21:38:20.141-07:00I'm gonna be doing a clynical Trial next month...I'm gonna be doing a clynical Trial next month, its going to me a mixture of Tobramycin and a new med. (but i forgot the name)..It targets pseudomonas too! Its going to be a 6 week clynical trial, and each time i go in they are going to pay me 50 bucks! Sorry I don't really have that much information on it right now, but I will call and try to get as much info as I can for ya!<br />Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-8121963203914214070.post-80314170691230593792009-07-18T09:53:32.569-07:002009-07-18T09:53:32.569-07:00I particpated in one clinical trial, probably 11 y...I particpated in one clinical trial, probably 11 years ago. Half way through, I got sick. It tunrs out on was on the placebo, so they pulled me from the study so I could begin other treatments. I guess if you introduce new meds or change you routine through the treatment, you can mess up the study (?) At least I think that is what they said. I have CF clinic next week, I'll ask my doc whatAnonymoushttps://www.blogger.com/profile/05978510057442573220noreply@blogger.comtag:blogger.com,1999:blog-8121963203914214070.post-88724808658756677552009-07-18T07:55:44.692-07:002009-07-18T07:55:44.692-07:00I, like you, haven't been in clinical trials i...I, like you, haven't been in clinical trials in years. If I remember correctly I was in the TOBI and Pulmozyme trials, but don't quote me on that. It was many moons ago and I was much younger so I didn't really understand what was going on.<br /><br />It looks like you're doing well!Katelynhttps://www.blogger.com/profile/02262160831487815067noreply@blogger.comtag:blogger.com,1999:blog-8121963203914214070.post-27777294137765855622009-07-18T06:50:02.300-07:002009-07-18T06:50:02.300-07:00Ugh. Can't view any of the videos from here i...Ugh. Can't view any of the videos from here in the hospital. I'll have to watch when we are home next week!Christyhttps://www.blogger.com/profile/04178876484998004685noreply@blogger.comtag:blogger.com,1999:blog-8121963203914214070.post-65696495439319875202009-07-18T02:38:06.612-07:002009-07-18T02:38:06.612-07:00Hi Ronnie...keep up the great work!! I just wrote...Hi Ronnie...keep up the great work!! I just wrote you a huge blog about my experience and just lost it all...but anyway, wanted to tell you quickly...my name is Joslyn I'm 31 w CF livin in Cali...but yes, I was on a clincial trial last spring...it was the MP-376 trial that targets Pseudemonas. I have mucoid and non-mucoid strands of PA...so it was a good fit for me. Don't know yet if IJoseehttps://www.blogger.com/profile/13349248994140796365noreply@blogger.com