tag:blogger.com,1999:blog-8121963203914214070.post4909878382189357988..comments2023-12-26T03:00:35.586-07:00Comments on Run, Sickboy, Run - Cystic Fibrosis and Exercise: How to Raise a Child with CFAnonymoushttp://www.blogger.com/profile/06849674714471543078noreply@blogger.comBlogger16125tag:blogger.com,1999:blog-8121963203914214070.post-83918626000796411262010-03-16T09:35:14.472-07:002010-03-16T09:35:14.472-07:00I agree with what you said Ronnie, you can't t...I agree with what you said Ronnie, you can't treat one kid differently than the others. You think they understand, but they don't, they are just kids. I have 4 kids in my house, my 2 step kids have CF and we treat them all the same. The younger of the 2 girls with CF had a lot of discipline problems and we got on a program with their mother where all the rules and punishments are Meghannoreply@blogger.comtag:blogger.com,1999:blog-8121963203914214070.post-80589002849579233802010-03-13T05:15:06.274-07:002010-03-13T05:15:06.274-07:00I had two girls with CF (one is 45 and still doing...I had two girls with CF (one is 45 and still doing fairly well) and one without. I did tend to spend more time with the older one with CF-mainly because she was sicker than her sister. She was three when she was diagnosed and already had heart problems as well as digestive and lung problems. I knew I wouldn't have her very long-she died just before her 11th birthday. I was honest with the Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-8121963203914214070.post-36951770342568071402010-03-12T14:28:18.195-07:002010-03-12T14:28:18.195-07:00I am struggling with this issue.
While in a perf...I am struggling with this issue. <br /><br />While in a perfect world you could say that you shouldn't treat CF children differently than non CF children I think it's more complex than that. <br /><br />Luke (2) is sensitive to meds. It seems like a lot of allergy meds and especially prednisone (which he is on quite frequently) make him bi-polar/angry. Disciplining that is NOT easy. We Courtniehttps://www.blogger.com/profile/05032154054139102775noreply@blogger.comtag:blogger.com,1999:blog-8121963203914214070.post-37690430674439888732010-03-12T14:24:17.587-07:002010-03-12T14:24:17.587-07:00Ronnie you are right on! From the first day findi...Ronnie you are right on! From the first day finding out Melissa had CF my husband and I said we will not let CF control her. She is now 2 1/2 and she doesn't get special treatment because she has CF. If she doesn't like what we are having for dinner then oh well. I know she needs her calories, but there are just times she starts pulling her terrible two fits and we don't put up The Liberto Familyhttps://www.blogger.com/profile/03140621045495054419noreply@blogger.comtag:blogger.com,1999:blog-8121963203914214070.post-49476695653086575302010-03-12T12:25:06.858-07:002010-03-12T12:25:06.858-07:00Harsh NO! I have 9 year old twins, one with CF an...Harsh NO! I have 9 year old twins, one with CF and one without. They have to be treated the same. I do however, commiserate with her about the food thing. I cannot get enough calories in my Cfer. I cannot add the powders etc. to her food cause she is too smart for that and if it changes the consistency of her food or drink...forgot it, she wont eat it. Alison (w Cf) is allowed to eat what DougJillAbsandAlhttps://www.blogger.com/profile/10500171195098853936noreply@blogger.comtag:blogger.com,1999:blog-8121963203914214070.post-16686096306100669902010-03-12T11:38:41.720-07:002010-03-12T11:38:41.720-07:00I'll be the one to stand up and say that I com...I'll be the one to stand up and say that I completely identify with Dad! It is so easy to get into a routine where we make concessions for the CF child in order to get them to eat and to do their treatments. We see what they go through and often times it is a real struggle to make ourselves put our foot down and have them conform the hard way. The good news is that she's only 3 so Dad hasJessienoreply@blogger.comtag:blogger.com,1999:blog-8121963203914214070.post-35137409518145277852010-03-12T11:12:29.718-07:002010-03-12T11:12:29.718-07:00Thanks for this Ronnie, I appreciated reading your...Thanks for this Ronnie, I appreciated reading your advice. I know I am going to have to go through the same problems raising my lil CFer. The biggest problem for us is food. He knows he can eat what he wants and he isn't even 2 yet.Anonymoushttps://www.blogger.com/profile/04083710190185453271noreply@blogger.comtag:blogger.com,1999:blog-8121963203914214070.post-87555909731619990802010-03-12T11:00:02.061-07:002010-03-12T11:00:02.061-07:00I am a mom of a feisty 21/2 year old who also alwa...I am a mom of a feisty 21/2 year old who also always wants her way, but I am the parent and because she has CF, that will not change it. Rules should not change because your child is ill. Here is a book that was written by Foster, who was co-author of Love and Logic. He teamed up with a CF mom and wrote the book "Parenting children with Health issues" Excellent read. I heard him Taranoreply@blogger.comtag:blogger.com,1999:blog-8121963203914214070.post-48661240438211460282010-03-12T10:51:36.914-07:002010-03-12T10:51:36.914-07:00You were just saying what needed to be said. We ar...You were just saying what needed to be said. We are dealing with the same problems with a 5 year-old with CF. He, too, is spoiled...mostly because he's an only child. <br />If he doesn't eat his dinner, he doesn't get the dessert he wants. Intead of ice cream, he gets string cheese or yogurt. Of course, he is now saying "but I have CF and NEED ice cream." It used to break Crystalnoreply@blogger.comtag:blogger.com,1999:blog-8121963203914214070.post-51373247413129077042010-03-12T10:50:00.992-07:002010-03-12T10:50:00.992-07:00I have two daughters with CF and have never treate...I have two daughters with CF and have never treated either of them any differently than I would a non-CF child. I don't know any difference myself. Both my girls grew up knowing they were loved but neither got any special treatment. I think you were spot on in your comments and hope that this Mom will take your advice to heart. I think it's hard enough dealing and living with CF Terri in Torontonoreply@blogger.comtag:blogger.com,1999:blog-8121963203914214070.post-40465795703482058122010-03-12T10:50:00.993-07:002010-03-12T10:50:00.993-07:00I think Ronnie hit it on the nose. Kids are still ...I think Ronnie hit it on the nose. Kids are still kids first and will push their limits. My son is 2 (he has CF) and is always trying to get away with something. If I gave him constant exceptions "because of CF" then he would be a terror!<br /><br />He has some trouble gaining weight but also deals with the normal 2 year-old eating habits like food jags. I typically make something Ericahttps://www.blogger.com/profile/12500639056217576886noreply@blogger.comtag:blogger.com,1999:blog-8121963203914214070.post-33568397373679288062010-03-12T10:44:31.982-07:002010-03-12T10:44:31.982-07:00As a mom of two young kids with CF, I have already...As a mom of two young kids with CF, I have already found myself trending the same way as the author of the post. I do agree with much of what you wrote - and I find it encouraging that you turned out well being raised as "normal" as possible. However I can understand the authors reasons for her actions. I want my kids to get enough to eat. And when my son refuses dinner, it is an inwardRebecca Fishhttps://www.blogger.com/profile/04244099204360531381noreply@blogger.comtag:blogger.com,1999:blog-8121963203914214070.post-41616694733286783342010-03-12T08:00:12.183-07:002010-03-12T08:00:12.183-07:00No, you speak like someone who has been Alyssa. I ...No, you speak like someone who has been Alyssa. I was raised as an only child, so I don't have any sibling comparisons to have any issues with, but I WAS pounded with chest PT 2, 3, 4 times per day from as early as I can remember until 14 or 15 yrs old. I did my aerosols or I didn't do sports (we even got a DC/AC adaptor for the car to do aerosols on the way to sports).<br /><br />My mom Jesse Petersenhttp://www.cffatboy.comnoreply@blogger.comtag:blogger.com,1999:blog-8121963203914214070.post-66760770859079165212009-07-02T08:32:42.659-07:002009-07-02T08:32:42.659-07:00I've never treated the kids differently, Katy ...I've never treated the kids differently, Katy (the youngest) has CF and was always a very picky eater. We just kept fruit & veg & snacks around all the time. As a result her brother is a gannet (he eats all the time - but is stick thin) and her older sister loves veg raw.<br />Somebody told Katy where meat comes from at the age of 18 months and she insisted on being vegetarian for theUnknownhttps://www.blogger.com/profile/10516396180673207676noreply@blogger.comtag:blogger.com,1999:blog-8121963203914214070.post-3213357716342895092009-04-10T01:46:00.000-07:002009-04-10T01:46:00.000-07:00I don't think yo were too harsh at all! You said i...I don't think yo were too harsh at all! You said it very well. <BR/><BR/>My parents treated me just like my brother. The same rules applied to me as did him. If I didn't finish my dinner, no special privileges. I did my treatments (at the time, it was all by hand) like I was told. Yes, there were times where my parents may have given me a little slack, but for the most part, treated me like any Kateyhttps://www.blogger.com/profile/11628086713110351792noreply@blogger.comtag:blogger.com,1999:blog-8121963203914214070.post-27322603592834897992009-04-09T19:23:00.000-07:002009-04-09T19:23:00.000-07:00harsh, no but brave, yes. I agree with you but I d...harsh, no but brave, yes. I agree with you but I don't know if I would have had the guts to say what you did. My husband has 3 siblings without CF and one with CF. One of the non CFers is his twin sister. They never got treated diffrently and it did a LOT of good. My inlaws were awesome!Graciyhttps://www.blogger.com/profile/00704481136805627502noreply@blogger.com