tag:blogger.com,1999:blog-8121963203914214070.comments2023-12-26T03:00:35.586-07:00Run, Sickboy, Run - Cystic Fibrosis and ExerciseAnonymoushttp://www.blogger.com/profile/06849674714471543078noreply@blogger.comBlogger1270125tag:blogger.com,1999:blog-8121963203914214070.post-87728960712331887852016-08-17T17:46:27.417-07:002016-08-17T17:46:27.417-07:00Hi you guys..and first and foremost congratulation...Hi you guys..and first and foremost congratulations on your new addition even if only temporary.. I hope what I am about to say helps just even a little bit with your concerns<br />This is going to go back a little bit probably 20 years 15 years, I used to run a small home daycare but I worked for the Department of Social Services I was also a license foster parent for emergency cases All My Anonymoushttps://www.blogger.com/profile/10422013477930546449noreply@blogger.comtag:blogger.com,1999:blog-8121963203914214070.post-49260038100173086442016-08-17T14:53:22.226-07:002016-08-17T14:53:22.226-07:00Praying for yall family <3 What you guys do is ...Praying for yall family <3 What you guys do is amazing.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-8121963203914214070.post-87796281978863468082016-08-17T13:58:55.236-07:002016-08-17T13:58:55.236-07:00My parents were foster parents when I was a child ... My parents were foster parents when I was a child & I feel that you are giving your a precious gift as well Baby S.God Bless you and your family for reaching out to these children. <br />.Anonymoushttps://www.blogger.com/profile/05074157024031476706noreply@blogger.comtag:blogger.com,1999:blog-8121963203914214070.post-13444899269429790342014-12-21T17:21:29.275-07:002014-12-21T17:21:29.275-07:00Congratulations on your new family member. What a ...Congratulations on your new family member. What a blessing you are to that precious child. It is so fun taking care of those little ones who need love and a home. We were "baby boarders" for an adoption agency for a short while and got to take care of babies who had been discharged from the hospital but the adoptive parents hadn't taken custody yet. That was back when they fairly Sherrihttps://www.blogger.com/profile/12640124554776557003noreply@blogger.comtag:blogger.com,1999:blog-8121963203914214070.post-31641993876105343552014-12-17T00:32:36.190-07:002014-12-17T00:32:36.190-07:00Congratulations! How exciting! M's reaction t...Congratulations! How exciting! M's reaction to N's arrival is heart warming. I wish you could share pictures but I completely understand why you can't! You can tell how loved she is by what she's modeling when interacting with N. Did you (and if so how did you) explain to M that N will not be there forever? I think what's said would differ from child to child but I'm Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-8121963203914214070.post-76699164357838875412014-12-15T21:49:31.548-07:002014-12-15T21:49:31.548-07:00Congrats! I work in Labor and Delivery- we're ...Congrats! I work in Labor and Delivery- we're often in need of solid family placements for babies during transitional times. I'm so encouraged that another loving family has opened their home to little ones in need! Erin Lazerbeasthttps://www.blogger.com/profile/03122819104665081199noreply@blogger.comtag:blogger.com,1999:blog-8121963203914214070.post-16681274337463425592014-12-15T18:55:25.883-07:002014-12-15T18:55:25.883-07:00Congratulations! Congratulations! Ashlea Hhttps://www.blogger.com/profile/10328370296329803027noreply@blogger.comtag:blogger.com,1999:blog-8121963203914214070.post-16954707130638138422014-10-09T20:33:33.341-07:002014-10-09T20:33:33.341-07:00Yes, absolutely. There are a fee others in your bo...Yes, absolutely. There are a fee others in your boat on there too :)Anonymoushttps://www.blogger.com/profile/06849674714471543078noreply@blogger.comtag:blogger.com,1999:blog-8121963203914214070.post-17478839295927857512014-10-09T15:14:37.905-07:002014-10-09T15:14:37.905-07:00Thanks! I don't have CF though, is it still ok...Thanks! I don't have CF though, is it still ok to join? I have bronchiectasis/follicular bronchiolitis/interstial lung disease. I don't have cilia in my lungs which causes frequent pneumonia, difficulty breathing, congestion, and pleurisy. I'm kind of desperate, since so many of my maintenance meds I'm not off of :(Anonymoushttps://www.blogger.com/profile/04641816072796796743noreply@blogger.comtag:blogger.com,1999:blog-8121963203914214070.post-55569687921715441972014-10-08T20:48:04.917-07:002014-10-08T20:48:04.917-07:00Are you on CysticLife.org Jane? If not, register a...Are you on CysticLife.org Jane? If not, register and look me up on there! I can hook you up with some other mamas :)Anonymoushttps://www.blogger.com/profile/06849674714471543078noreply@blogger.comtag:blogger.com,1999:blog-8121963203914214070.post-55952960814907494352014-10-03T16:25:52.105-07:002014-10-03T16:25:52.105-07:00I have been looking for a blog of a women who has ...I have been looking for a blog of a women who has CF/lung diseases and who is or has been pregnant. I know you're linked to a lot of other CF blogs. Do you by any chance know of any? I finally got pregnant through IVF, but am so scared :( At just 5 weeks I'm already dealing with crazy painful pleurisy. Anonymoushttps://www.blogger.com/profile/04641816072796796743noreply@blogger.comtag:blogger.com,1999:blog-8121963203914214070.post-13998323684890500932014-10-01T08:21:50.434-07:002014-10-01T08:21:50.434-07:00It's due to congenital absence of vas deferens...It's due to congenital absence of vas deferens. The tube that carries the sperm from the testicles to meet up with the semen is not present in most males with CF. So upon ejaculation, semen is present, but sperm is not. Anonymoushttps://www.blogger.com/profile/06849674714471543078noreply@blogger.comtag:blogger.com,1999:blog-8121963203914214070.post-30862150599912144932014-09-29T15:03:24.243-07:002014-09-29T15:03:24.243-07:00Ignorant lady question here: Why do you have to do...Ignorant lady question here: Why do you have to do it that way instead of meeting a cup? It it because mucus blocks your swimmers from getting out? I have a CF son and while i'm sure he would hate to be informed by me, if I'm looking towards a future I may as well have answers if he were to ask. Thanks for putting the information out there. Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-8121963203914214070.post-55747641612529496792014-08-05T10:09:23.965-07:002014-08-05T10:09:23.965-07:00I actually read that article also and found it fun...I actually read that article also and found it funny/interesting :)Anonymoushttps://www.blogger.com/profile/06849674714471543078noreply@blogger.comtag:blogger.com,1999:blog-8121963203914214070.post-42471233242410406562014-07-31T14:53:41.878-07:002014-07-31T14:53:41.878-07:00Ugh a roomba has been on my amazon wish list for y...Ugh a roomba has been on my amazon wish list for years, if love one! In regards to the almond milk, I found this article very enlightening myself, you should check it out, despite the somewhat in appealing title. I was pretty surprised myself :)<br /><br />http://m.motherjones.com/tom-philpott/2014/07/lay-off-almond-milk-ignorant-hipstersGlue Meets Paperhttps://www.blogger.com/profile/14395813823137441539noreply@blogger.comtag:blogger.com,1999:blog-8121963203914214070.post-28463800524814700432013-08-01T21:33:12.772-07:002013-08-01T21:33:12.772-07:00For your ability to motivate and inspire and stay ...For your ability to motivate and inspire and stay positive even when we all know that sometimes just breathing has to be tough for you...thank you for speaking and blogging. Sometimes its all we have. And so much more...no words...<br />Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-8121963203914214070.post-9097949712075830602013-05-24T07:47:49.004-07:002013-05-24T07:47:49.004-07:00Hi Ronnie. I am thankful that I get to be a mom, a...Hi Ronnie. I am thankful that I get to be a mom, a daughter, and a sister. I am grateful that because of the tremendous support of my parents, sons, and sister, I am able to go to school to become a respiratory therapist. And I am thankful that people like you are willing to share your experiences so I can understand more and hopefully be a better therapist.Unknownhttps://www.blogger.com/profile/03900989230446841579noreply@blogger.comtag:blogger.com,1999:blog-8121963203914214070.post-90836929964613989802013-03-15T08:49:59.127-07:002013-03-15T08:49:59.127-07:00How is Ayn doing now? I'd love an update. :-)...How is Ayn doing now? I'd love an update. :-)Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-8121963203914214070.post-74482272999491944742013-03-08T17:50:18.428-07:002013-03-08T17:50:18.428-07:00That is so neat that you and your mom run them tog...That is so neat that you and your mom run them together. I'll be running my 11th half in 2 weeks and I've yet to come anywhere close to that 2:00 finish time. But I still love them.Denisehttps://www.blogger.com/profile/06000228133919099421noreply@blogger.comtag:blogger.com,1999:blog-8121963203914214070.post-56712835892024120212013-02-20T23:27:27.595-07:002013-02-20T23:27:27.595-07:00Yeah. Probably didn't know what CF was. You wo...Yeah. Probably didn't know what CF was. You would think most ppl would know by now??Lorettahttps://www.blogger.com/profile/17908609802114027481noreply@blogger.comtag:blogger.com,1999:blog-8121963203914214070.post-10216864725092214472013-02-15T13:20:58.243-07:002013-02-15T13:20:58.243-07:00This made me laugh out loud! No joke. I can totall...This made me laugh out loud! No joke. I can totally completely relate. Inspiredhttps://www.blogger.com/profile/05491700720125426081noreply@blogger.comtag:blogger.com,1999:blog-8121963203914214070.post-21375151491391112072013-02-13T14:49:38.993-07:002013-02-13T14:49:38.993-07:00Oh my gosh! your mom and i must have been twins by...Oh my gosh! your mom and i must have been twins by different mothers!I got the same news when Micah was 9 weeks old, the same "he's not living long" and at a year old, "we didn't think he was going to live to be 1."It was very difficult to get past the initial news and I actually ended up in the hospital for major depression.<br />I had actually spent a year or more paulawalkerbakerhttp://facebook.com/paulawalkerbakernoreply@blogger.comtag:blogger.com,1999:blog-8121963203914214070.post-89904006028364160562013-02-13T14:25:01.126-07:002013-02-13T14:25:01.126-07:00LOL. But maybe she went home and googled cystic fi...LOL. But maybe she went home and googled cystic fibrosis!Anonymoushttps://www.blogger.com/profile/13624196341231990335noreply@blogger.comtag:blogger.com,1999:blog-8121963203914214070.post-84942102141340466982012-11-15T17:58:04.403-07:002012-11-15T17:58:04.403-07:00Mandi and Ronnie, you guys are an inspiration. I r...Mandi and Ronnie, you guys are an inspiration. I recently saw your engagement video and it led me to your site.Thank you for for reminding me of His great love and the fact that He uses our challenges to do wondrous things!Anonymoushttps://www.blogger.com/profile/13363391405090414967noreply@blogger.comtag:blogger.com,1999:blog-8121963203914214070.post-38801632021999030872012-09-04T15:54:39.929-07:002012-09-04T15:54:39.929-07:00It is...it's the half cheering, half obnoxious...It is...it's the half cheering, half obnoxious version of the catchy tune!Mandihttps://www.blogger.com/profile/13772455294477644859noreply@blogger.com