Tuesday, January 18, 2011

Freak Things Happen

So today Mandi and I were running around to doctors appointments, relaxing and, of course, observing MLK day the best that we could. Earlier in the day we had a fertility appointment to make sure that Mandi's eggs were still looking good and to go over how to give the shot that looks like a horse tranquilizer (I'm kidding, it's not that bad). We were also able to sit down with the doctor and go over some details about the whole process, which I'm sure we'll get into with you guys soon here on the blog. Just as a teaser though, stuff like how many eggs to fertilize, how many embryos to "put back" and what to do with the embryos we don't use at the moment. So as you can guess, it was quite the conversation, but we'll save it for another time.

Back to the part when we got back from the appointment. Wait a second, first let me set this up a bit. I've been feeling great. Mandi and I have been eating better. We've gotten back into the gym. We're getting back on track with exercise. I'm doing my treatments consistently and faithfully. I've noticed that my cough has decreased over the past couple weeks and my mucus has gotten lighter. All in all, no complaints, and I'm feeling pretty good. Now, I said all of that to say, today I coughed up blood, and a lot of it.

It was the weirdest thing. We pulled into our garage and just as I was getting out of the car, I felt it. It's a certain rattle that we get in our chest just before the blood comes up to play (you CFers know what I'm talking about). I walked out of the garage, coughed and spit. Sure enough. Bright. Red. Blood. I immediately made a dash for the bathroom sink because I didn't want to stain my rocks in the front yard! :) I coughed and coughed and coughed, each time bringing up the good stuff. There are different kind of coughing up blood episodes, those that just make your mucus a bit red and those that look like a murder scene. With each cough, blood splattered into the sink, and I'll I could do was hope that my aim was good. About 5 minutes and 1/2 cup of pure blood later, it stopped.

Ok, now what's the point? The point is, stuff happens. Stuff happens that we can't explain. Good stuff happens. Bad stuff happens. Life would certainly be a lot easier if we could explain everything, but it'd also be pretty boring. In this CF life, unexplained stuff can happen often. I think the key though is not what happens, but how we react. I didn't panic. I didn't get mad. I didn't stress out. Stuff happens. Stuff happens and we move on. Sure, I adjusted my treatment regiment today to try to prevent more blood, but other than that, I wake up tomorrow and I move on. I'll make sure to get four treatments in. I'll make sure to pay close attention to what my lungs are saying. I'll let my doctor know what's up on Wednesday when I have my (drug trial) appointment. Other than that, I do nothing different. I've been good lately about doing what I have to do to kick some CF booty. Faithful with my treatments. Faithful with exercise. Freaky stuff can still happen.

So I move on.

Comments (27)

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I always got a girgling sound in my chest. When my lung bleeds became more frequent I would wake up in the middle of the night from dreams where I was literally drowning in my dream only to wake up full of blood. It's something that becomes a part of CF and rarely freaked me out much. I hope it clears up. . .it will. What would make other people FREAK OUT, Cystics handle with ease!

I think there is a med/vitamin to reduce lung bleeding.
Wow! I admire how you were able to keep your cool with this situation. The first time I coughed up blood (about 2 years ago) I panicked! The second time was better but I still felt really scared. I hope to be able to handle these situations more calmly in the future, but it is just really scary to me.

And I am one of those persons who always wants an explanation for why something happened. Kudos for being ok with not knowing. I am working on both of these things :-)
I admire your peace!! I'm working on not "freaking out" when we get CF reports on the kiddos. I'm usually okay with myself, but when it happens to the babies I tend to panic!!! I've been praying for your little family during this "baby making" process. We've been there...TWICE! I love the updates and I will continue to pray for healthy, 5 day blasts to transfer!!
1 reply · active 741 weeks ago
John did that at work the week before our wedding in 2004. Needless to say, he was calm and cool.... I was not. He had never done that before. We went to the ER and they did an endoscopy, which was the worst sound I've ever heard in my entire life. He stayed over night for observation and all was well. Knock on wood, he's not had any more episodes like that since then. Keep your positive attitude Ronnie!
1 reply · active 741 weeks ago
Yuckity yuck yuck! I hate coughing up blood. I don't have CF but I did have really bad Bronchitis one year and coughed up a lot. The taste was horrible and I always seemed to get in on my clothes. Here's a tip for blood stains. Rinse with cold water immediately and if that doesn't work try a mild soap like bubble bath to wash it out. Also, have a toothbrush on hand for really smushing in the soap. I hope you feel better and I hope Mandi didn't get really freaked out!
1 reply · active 741 weeks ago
 Andrea Basto's avatar

Andrea Basto · 741 weeks ago

I remember when that first happened to me. I was in my room and i started coughing cause i had that "rattle" in my chest and i kept coughing and coughing and my chest was very tight. I coughed up probably 1/2 cup into a bowl. I freaked out!! First thing i called Mike Laird. Only person i could think of. He told me to calm down that is was just old mucus sitting way down in there that gets old and turns to blood. Nothing to worry about. I'm sure you would freak out if you coughed up 1/2 cup of blood. My mom was a little freaked out also. She is a nurse and she was scared herself! But i told her it was ok and it's normal. She was like.."That's normal??" LOL! My mom has been a nurse for years. She graduated in 1987. She comes in handy! Anyhow.....years later i would do the same but not as much...and of course just as Ronnie said, "Move on to the next day." :o) Course i had to do a treatment after that episode! Could hardly breathe. But i felt better after that. Boy...us CF'ers...we can take a lot of things! We are "Tough Cookies!"
1 reply · active 741 weeks ago
Being a cfer who coughs up blood sometimes, I completely agree. I am sure you know, that not panicking is probably the best thing to do, b/c it keeps your blood pressure and heart rate down, therefore allowing the vessel to clot... I am pretty good at getting it under control in a cough or two now a days... I try not to cough b/c I feel like that keeps the ripped part open, so I try to hold it in if I can... but its hard when that gurgle makes you feel like you are drowning.

I imagine being the veteran CF'er, and one who started CL, that you have some Vit k laying around for such episodes? I take it for a week (every other day) to help after a blood episode. I also imagine your docs told you to "lay low" for a day or so after such episodes so your blood pressure doesnt raise and possibly burst it open again... so (not to be too dirty) that means no baby making! ;) haha
1 reply · active 741 weeks ago
Rock on! That's too familiar, but only twice since March and not that much. I can totally feel you on the initial feeling and the hoping that your aim is good - your description is spot-on, fibro!
1 reply · active 741 weeks ago
Ronda Dell'Ario's avatar

Ronda Dell'Ario · 741 weeks ago

Hey Ronnie,

Just wondering what you do when you adjust your treatments after an episode like this. Do you contact your doctor when this happens, and if so, what does he or she say about it? Paul stops taking Pulmozyme and doesn't work out as much. Also, he's having hernia surgery next month and I was wondering if you have any pointers to help with recovery. (For him) Also, though, is there anything you think I could do as his wife to help? I love your attitude; it's awesome. Blood is always scary. Will keep you in our prayers. Please say hi to Mandi.

Ronda
1 reply · active 741 weeks ago
That happened to me for the first time about a month ago. I had a pretty bad cold and was hacking before bed. One huge cough and there was liquid in my mouth. I was SUPER confused. Even in the dark, I could tell it was blood when I spit it out. It might've been a tablespoon or so. I didn't have any gurgling and I tried to cough more out but that was it. I just went back to bed and told my mom in the morning. I didn't call my doctor, though I probably should've. Occasionally I cough up bloody mucus, but the pure blood thing is new...and I hope it never happens again haha.
1 reply · active 741 weeks ago
Glad you posted this, just recently I have been finding streaks of blood in my mucus, and I thought that was a cause for Panic Mode!!! (this is the third time in my life this has happened) I have not experienced an episode regarding your situation. Thanks for reminding me not to always freak out when Strange things happen. Hope you feel better! <3 Elizabeth
I know this scenario well. I find that taking oral vitamin K and taking it easy for a while is the best course of action.

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