Saturday, December 11, 2010
Friday, December 10, 2010
Guest post by Erin Goodrich
I started googling CF groups on the Internet during my hospital stay and I was surprised and comforted to come across multitudes of blogs with people who had CF just like me! I started reading Ronnie's blog with amazement, I even emailed him to get some tips! Once I got home from that hospital stay I hopped right on that treadmill!! Then, about 2 weeks later, I got preoccupied with many "other things" so I stopped for a little while; this cycle would continue for the next 8 months. Then May came, another admission (twice in one year, yikes!) During that time I went home on IV's and started walking on my treadmill the whole time. When the PICC came out and my PFT'S were up a little, I was ready to tackle this whole "exercising" thing head on! Also, during that time I started to share some of my fears and concerns to my boyfriend of 2 years and my closest friends, everyone was EXTREMELY supportive, which really helped.
Throughout the whole summer I walked with intervals of running, loosely following the couch to 5k program. I set a goal for myself that I would run the Troy Turkey Trot Thanksgiving morning. Once the fall came, I could still only run for 3 minutes at a time; gasping for air. I started to tell people I was thinking of running the Trot, but wasn't sure if I could do it. EVERYONE I told about this was extremely encouraging, all these people believed in me! My boyfriend and other friends signed up for the 5k and they were going to do it with me. Well there I was, out of EXCUSES, if others believed in me, I had to believe in myself. I had to do this, not only to prove to my friends and doctors that CF was not going to hold me back, but I owed it to myself to overcome the one thing that I thought I could never do, and that these past few years that were really hard for me were for a reason; a wake up call to put me on the proactive route with my CF rather than the reactive.
One month until the race I started to up my minutes of jogging, one night I ran 1.5 miles without stopping, when I got off the treadmill I was beaming with excitement (and dripping with salty sweat!) The next week I ran 2 miles without stopping, the week of the Turkey Trot I ran outside (in the cold weather) and ran 2.5 miles with only having to stop a couple of times. During this whole process my lungs were even feeling better and I could feel a difference! Then there I was, at the start line Thanksgiving morning, 29 degrees and cloudy skies with my friends surrounding me, good luck text's flooded my phone that morning. All I wanted to do was to FINISH, and be at least a little under 45 minutes. I was so nervous I wasn't going to be able to do the whole 5k. I took a deep breathe and thought to myself, think about what you can do, not what you can't do, and I CAN DO THIS.
I cannot put into words the feeling inside I had when I crossed that line. I even fought back a few tears, it was almost like a dream, I couldn't believe I DID IT!! No one could take this small victory away from me, not even CF. This was a new chapter in my life, this was a chapter where I started believing in myself a little more, working harder on my health by incorporating exercising into my life, and being more proactive. That way, the next time I'm sitting in that hospital bed, PICC in my arm I will know I am doing everything possible to keep myself healthy. I also know I have a very long road ahead of me, and even though they'll be some bumps on that road if I keep running full speed ahead I'll make it to the smooth ground again.
I also wanted to send a special thank you out to Ronnie, if it wasn't for you, I NEVER would have done this, thank you for inspiring and believing in me. I can't wait to see how far I can get these PFT's up! :)
Thursday, December 9, 2010
Wednesday, December 8, 2010
I like that it was only about a 15 minute prep time.
It was relatively idiot proof - you can't really screw up browning meat and pouring ingredients into a slow cooker.
It's a great meal for when it's cold outside, the heat of the meal really warms you up, without being an overly heavy meal, like most winter meals
You can put it all together and let it sit all day. Great for dinners when you're busy right up until meal time.
I loved smelling the different spices while this meal was being prepped. I think I could walk around with a ginger root tied to my neck.
For me, it had the perfect "heat". I could feel that heat in my mouth, but it didn't make me sweat like spicy things often do.
Brown, chop, mix, dump, turn on slow cooker. Not even I could mess this up.
The meal felt really light to me and had a fresh taste all of the way through.
What we'd change:
I would add more of each of the key spices: more garlic, ginger, and curry. I would mind more jalapeno, but it still had a pretty good kick to it with just 1.
This isn't something you can change, but something that is a bit of a con. It takes 8 hours in the slow cooker, so it's a meal that you need to think about the day before.
I would increase the curry, ginger and garlic. It had some good flavors, but I wanted more.
I would think about adding some chopped potato.
I'd love to have some naan bread with this meal.
Here's our overall rating (with 1 being the worst meal we've ever had and 10 being the best):
Mandi's Rating: 8.5
Ronnie's Rating: 8
Again, if you guys have any suggestions on how this is laid out or what you guys would like to see answered/done differently, please let us know :)
Tuesday, December 7, 2010
Monday, December 6, 2010
- Ronnie will sniff, and then get caught in a spastic, uncontrollable sniffing frenzy. It's like he gets "stuck". He'll sniff, sniff, sniff, sniff, sniff, sniff, sniff, sniff, sniff without realizing it. It drives me nutso. I generally have to get him to snap out of it by saying, "do you need a tissue?" or "knock it off, you're sniffing"...because I don't think he even realizes it.
- During University of Arizona games (doesn't matter what sport) he sits on the edge of the sectional, closest to the TV. Not comfortably and relaxed. He sits WAY on the edge, upright, generally fidgeting with his fingers or toes, COMPLETELY focused on the screen. Then if they win or there's a good play, he'll stand up and clap LOUDLY walking around the room. Not so much annoying, but it makes me tense to watch him watch a game!
- Ronnie has a face twitch (which he claims he does when his eyes are dry). It's the craziest face twitch ever. It's like an incredibly intense blink, only it's a circular motion of his whole face. It's like his face does the wave. One side of his face scrunches and then the twitch hops to the other side, all in a quick second. I always know what he's mid face twitch because I can hear that "spitty" sound from his mouth, when his cheek moves away from his teeth. This, like his sniffing, can become compulsive, and he'll start doing it really frequently until I tell him he's twitching or simply mock him by doing it back at him...ahh a wife's love.
- He INSISTS on making the bed in the morning. This is typically an awesome thing (because he usually just does it by himself before I can even help), but it turns into a not so great thing when we're running late, need to leave to get somewhere, but we have to first make the bed. Realistically, it's only a 1 minute job if we're both doing it...but 1 minute seems like a lot when you're late!
- If we're watching TV and I make comments or share my analysis of the situation happening on screen and he wants to just focus on the show OR I'm stating the obvious he'll say, "RIGHHHHHHHT" but in a crazy voice that starts quiet, gets loud, and goes quiet again, that sounds more like, "wwwhhhhIIIIIIIIIIIIIIIIte." (capital "I" being the loud part)
- He knows I scare easily, so he'll hide in random parts of the house when he knows I'm looking for him, so he can catch me off guard and startle me - it almost always works unless Jezzabel finds him first, ruining the surprise. (I sometimes try to get him back by hiding and jumping out at him...but somehow he ALWAYS knows I'm there).
- Ronnie thinks it's funny to randomly honk the horn while driving. He probably wouldn't do it very often, but the first time he did it I got on his case, telling him, "it's illegal" (I did in fact google it...and I think it is actually illegal to honk for no reason, although no very easy to enforce). Needless to say, he probably only does it so often because he likes the exchange. HONK. "Ronnie, no. It's illegal." Recently, he started making up reasons to honk the horn, so my "it's illegal" would be unfounded. Now he'll randomly honk the horn and yell, "GET OUT OF THE ROAD" while "shooing" the imaginary people out of the road. And another car thing he likes to do (maybe could be #8 or tied into #6, but I'll just put it here) is that if he's driving and knows I'm zoned out, he'll tap the breaks and throw his arm across me as if we're about to get in an accident, just to make me panic.