Saturday, August 27, 2011
Friday, August 26, 2011
Thursday, August 25, 2011
Wednesday, August 24, 2011
I have a question for you...I totally respect your opinion and would love it if i could ask for it I have a little girl with CF I am looking at accepting a position in the ER...I will be going into rooms and registering them into the system. Do you think this would be putting her health at risk? I have posed this question to everyone at the hospital and they are of the opinion if I am taking the necessary precautions, I should be ok. The reason I am looking into this is because the hours work so that I can still stay home with her during the day. AAAAHHH....help???
This was recently said on CL and it relates to your question...
"I work on a trauma floor and we have tons of sick people there. to avoid me bringing it home to my little cyster and fibro i avoid all contact with them right when i walk through the door and my shoes never see the inside of my house."
Could always do that if you'd like to be extra cautious.
Also, I worked for a couple of years in a homeless shelter and there was more sickness in that place than you could shake a stick at. My doctors gave me the same advice that I started with - Do your best to protect yourself and use common sense.
Hope that helps!!
I saw on an old thread on CL that you use the Mobilaire 50 psi compressor. A few other friends either have it or are using it. So I am also polling them. What are your favs and not so favs about it? We will also have the VIOS or even the old Pro Neb Ultra for travel, but day to day is the Mobilaire worth the investment? Our clinic is supportive in writing the script since we have gone through so many PARI machines...
I travel with mine as well since I travel so often and it really affords me the opportunity to fill my travel days with stuff that I need to get done because I don't have to be at the hotel for hours on end doing treatments. It is a bit heavy to lug around, but for me it's worth it.
If you're looking for a compressor for day-to-day home use, honestly, this purchase is a no-brainer!! I couldn't encourage you enough to get the Mobilaire.
Favs - It's fast, effective and durable
Not favs - Wish it were lighter and less bulky for travel, but that would probably cut down on the power it has.
Tuesday, August 23, 2011
What a great weekend (as you can tell by Mandi Monday being posted on Tuesday)!
As Ronnie posted, we were in California for a good friend’s wedding. The wedding was in one of my favorite places in the country, Newport Beach. I absolutely love everything about that place; the weather, the quant strip of shops and restaurants, the houses, the beach…I could go on forever. I could live anywhere in the country and bring our families with us, I would move us all to Newport Beach. The only catch is that we’d all need to be multi-millionaires to buy homes there!
It was awesome visiting my favorite town, and for such a great event. Kirra and Tyler’s wedding weekend was fantastic. The rehearsal dinner was great, the wedding was wonderful, and the brunch on Sunday was amazing. It was great to get to spend time with them and share such a joyous event in their lives.
One last minute addition to our trip was yesterday (we extended our trip by a day). Last week we received an email from the folks behind The Power of Two movie about premiers being held in LA this weekend. Because CysticLife is a Community Partner of The Power of Two and because Ronnie and I are HUGE fans of all that Ana and Isa do for the CF community, we decided that we had to go to one of the premier showings of the documentary.
Holy smokes - it was amazing. Ana and Isa are such huge inspirations to Ronnie and me (and the whole CF community). I was so excited to watch a film about their great accomplishments and life stories. I was not disappointed. I recommend this film to everyone in the CF community, transplant community, and really, anyone who likes an inspiring story about two great people. I’m eagerly awaiting its release onto DVD so I can purchase a copy to watch anytime! I can’t rave enough about these two women and I can’t say enough about what they have created with this documentary. There are additional showings, and I highly recommend going if you can. If you can’t, wait eagerly for a chance to purchase a DVD!!
Another awesome coincidence is that because we were headed to the premier, we were able meet with a dear friend and business colleague who lives in Santa Monica. She has been out on maternity leave and we’ve missed her in all of our work dealings. So getting a chance to meet up with her for a couple of hours and see her handsome little boy (I can only hope Peanut will be ½ as cute) was incredible.
All in all it was an awesome vacation, mixed with a little business!