Friday, June 19, 2009
Dang You Global Whatever You're Called Now!
My legs really started to get warmed up during my walk and my feet weren't sore at all. Maybe that's the key that I can take away from yesterday: stretch out my feet until they hurt so bad I can't stand and then look forward to a pain free day the next. Who knows right? Well I also coughed my brains out on the walk this morning. The good news is that most of the mucus was clear with just a slight yellow tint being in some of it. Bad news is I may have coughed up all of the colorful stuff while I was in bed and swallowed it which would explain my slightly upset stomach. But I did get a ton of stuff out this morning so overall I am very happy about that. I'm just hoping to avoid the lung pain that often follows mornings full of coughing.
The next couple weeks I'll be keeping a very close eye on my lung health cause I know it could be getting to that time to get a tune-up again. I am very pro-active with my hospital stays and as soon as I feel myself slipping, I go in. For me, I need tune-ups to continue living the lifestyle that I'm accustomed to living.
Total Distance: 2.0 miles Time: 38'12"
Total Distance for Day: 2.0 miles
Labels:
CF,
Cystic Fibrosis,
Hospital Stays,
Sore Feet,
Workouts
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4 people had something to say...:
hey brother i will be heading home in july.. i would love too catch up with u...
Global whatever is causing it to rain yet again... jno pool days for me enjoy your sun! :)
I have resorted to vitamin D drops now :)
I have a question for you about tune-ups. How often does your doc like you to do them? Or is it just based on how you feel? Just wondering because I've had a PICC twice. Once in 98 for pneumonia, then last year when they thought it had been 10 years so let's do one. I'm thinking, should I be more assertive and try to do IV's once a year then? Just to stay on top of things? I've never known my docs to have a certain protocol type that I know of....thanks. :)
Since about 25 years of age or so I've been going into the "Hole" every three to four months. Before that I would go in about twice a year. As you see, I've always had tuneups, so to me, they are not a huge deal. I first was hospitalized when I was 10 or so. Speaking of PICCs, I've had over 30!
I'm VERY pro-active when it comes to hospital stays and I would even go in if my numbers didn't indicate that I had to. For me, it comes down to wether I can continue to live the lifestyle I'm accustomed to. If I find myself more short of breath, coughing much more, or just overall tired, I check myself in.
Some CFers "agree" with what I do and some absolutely hate it. I just know that to live my hectic lifestyle I have to be at full tilt. The only way I've been able to go from sick to "full tilt" is a hospital stay. To be honest with you, I'm not sure how my doctors feel about it. They do say however that they don;t know many CFers who take care of there disease or are more committed to life than I am. So I guess that's a good thing?!
Just know though that everything can be a double edged sword. Getting the antibiotics have been great for me, but in the long run who knows what they're doing to my other organs.
I hope that answered your questions.
Ronnie
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