Monday, August 30, 2010

First Hospital Stay with My Husband

This week brings yet another first for Ronnie and I as a married couple. Ronnie's going in for his first tune-up since we've been married, and for some strange reason, I'm a little nervous. "Why??" you might ask. GREAT question. I have no idea why. This hospital stay is no different than any other he's had since we've been together. He's being treated at the same place. Same docs. Same nurses. Same routine. I'll go down to Tucson to be with him, just like every other time. So who knows why this one feels different. I have only two guesses: 1. Because I'm leaving behind our home and have to get everything all situated to leave or 2. Because I'm his wife, I know feel a greater sense of responsibility for his well-being while he's in.

Those are simply my best guesses. Neither of them feel quite right, when I say them out loud (err, type them). I don't really feel that nervous to leave the house. We did a bunch of cleaning and yard work today, to get the house in a position to leave it sit. We got the neighbors all lined up to check our mail, check on our house every other day, and keep an overall eye on things. All that's left is to empty out stuff that could go bad in the fridge, pack, and unplug the coffee maker (why on earth people unplug the coffee maker, I actually have NO idea. You just always hear that people do it when they leave for vacation. Is it because it could start a fire? If so, pretty sure you don't want the coffee maker plugged in when you're home, say, sleeping at night?! Please let me know why I do this!).

So while it doesn't seem like the house should make me nervous, maybe it's guess #2. Although, I also don't really feel a greater sense of responsibility for Ronnie's well-being now that we're married either. I mean, if I had to guess why I'm a little anxious about this stay, and it's not being worried about leaving our house, it seems like this would be it....but if it is, it's minor or very subconscious. Although I guess if I mentioned it as one of two possibilities as to why this stay is different, it can't be all that subconscious! It feels in some ways like I should take on more responsibilities regarding his stay, but truthfully, there's not much I can do. I don't have a house there, so I can't cook him home-cooked meals. I'm not responsible for his treatments or IV meds that's what RTs, nurses and Drs are for. His mom and brothers are always around to bring us anything from the "outside world" that may be needed. Hmmm, come to think of it, I'm relatively useless when it comes to hospital stays!!

However, I will say this - even though, for whatever reason, I feel a little nervous/anxious about this stay, I am excited. There are little things about hospital stays that I love. I LOVE Dunkin Donuts on weekend mornings. I LOVE listening to podcasts of our favorite radio program. I LOVE spending more time with his mom, stepdad, and brothers. I LOVE the feeling of getting ready to go for a walk outside. I LOVE watching Ronnie sleep as he gets pounded. I LOVE knowing that he's getting healthier. I LOVE walking down to the cafeteria for hot chocolate. I LOVE snuggling in his tiny hospital bed, trying not to rip out his PICC line. I LOVE the quality time we get to spend together. There's just something about hospital stays that bring us closer together....and that I am excited for!

So for better or worse, excitement or nervousness - hospital here we come :)

Comments (23)

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I left the coffee maker plugged in (and on!) yesterday when we went to church, so I would have hot coffee when we got home home, and got the "you could have burned down the house!" comment from Paige.

Isn't that what the things are designed for? Plugging them in, so your coffee stays hot? I've got no idea why the paranoia about coffee pots.

Have a good time in "the hole"!
Hoping that this hospital stay brings you two (even more) together than you already are....and makes Ronnie healthier!!!
This is just a check up right? How many check up Ronnie has?
What kind of exams is he doing? I'm sure everything will be fine.

Marc
9 replies · active 761 weeks ago
This is a hospitalization that will last 14-30 days (probably closer to the 30 day end) where he will be getting IV antibiotics.
Sorry to be a pain but I'm wondering why Ronnie is not doing that treatment at home?
I'm saying that because in the CF center following my kids they told me that they are now pushing a new kind of drip that can last 14 days (I mean no need to change every 3 days and do it somewhere else) a nurse is coming at home for the IV. The drip is a plastic tube that is installed for the totality of the treatment, they told me patient doesn't need to stay at the hospital.
The percentage rate for healing is the same as staying at the hospital but you need to follow strict procedures.

I can imagine how long it is 14 days...I guess the cause is the same so why not asking your center if this is possible? Does I make sense?

Take care,
Marc
Makes perfect sense and for some people that works! For me, I've tried home IV's in the past and never responded like I do when I'm in the hospital. But I agree, if you get the same response at home, then do it at home :)
I see...
Any idea how you catch that or it just happens with no reason? Do you think about it or you don't want to?
bacteria, this is why you need IV right?
Mine never goes away, it just gets beat down and then flares back up again. I go into the hospital to beat it back down :)
I see...

Take care Ronnie
karen scheffe's avatar

karen scheffe · 761 weeks ago

you must remind me next time I'm in town and I'll give you coupons so you don't have to pay for your DD coffee in the AM.. Admire you Missy!!
Mandy, My husband and I have been together 8 years and 2 of those years in marriage. We lost count of hospital stays a very long time ago. I started with my kidney failure in Nov of 2009 on top of my transplant and CF. ever since Nov. I come in every month or two months. the good thing is that the lungs are perfect. (We think I have steel lungs).

My husband stays with me on weekends, and my mom on weekdays. My husband comes here staright after work and goes home late. I must say it takes special people like you and my hudsband to be here for us in our toughest moments. I dont think any of us can ever get used to hospital stays no matter how many times we go in. I don't doubt that you guys as our spouses, always worry when you hear the news that we have to go in. Its nerve wrecking for you to see us go through what we go through. I know my husband worries a lot even though he never shows it. He is my strength when I am too weak, and he helps me get through it. I hope Ronnie gets better soon, and that you are both home soon.

Oh and as for the coffee maker, I cant answer because we dont drink coffee in our home and its always plugged in lol
I was reading the blog and the comments and I have to agree with Elle! Our spouses are something special..My fiance and I have been together for almost a year (I know, not that long) I am being evaluated for transplant and when he isn't working he is at my side taking me to doctor's appointments, luggin my oxygen machine around, cleaning and cooking when I don't feel good, and hooking up my ivs when I am on home meds. I have been hospitalized twice since we have been together (I usually do ivs at home) and both times he had to work so he made sure he texted me throughout the day and called me every night to see what the doctors said. When he didn't have to work he stayed with me as long as he could. My cf hospital has strict visiting rule 12pm-8pm...sometimes they let people stay a little later. I know its a lot for us to handle and I can't imagine what its like for our spouses.
Do you actually get to stay overnight in the hospital with Ronnie?
1 reply · active 761 weeks ago
You know it!! We set a cot up for her so she has her very own "bed" :)
when kaleb and i go in (I say "I" but really he is in and I am his cheering squad) I try to look at it as a little vacay and some time for just us. I know, weird. Praying for you two to have a great time together while you are there. Sorry you have to go in!!
I don't know how it feels to be the spouse, but I am the Momma of a Cfer and I do know that I felt all the same things too that you described. It was like our own private little oasis. I hope this tuneup has Ronnie up and feeling fantastic just like a super star when he is all done. A vacation would be more fun, but I am sure that you can make this your 'own' vacation.
I just spent a week in the hospital w/ my 4 year old (we're on home IV's now), but I agree that the time you spend together is precious & unlike time in the outside world.
Well, I wish the both of you good luck and hope Ronnie will feel better son. 'Cause even though there are 'fun' sides to a hospital stay, you'd just rather not go there.

Actually, since a couple of months I unplug my coffee maker and water boiler whenever I go to sleep or leave the house... ;)

Greetings,
Judith (CF, Netherlands)
About the coffee pot thing. We left ours on one day when we had an appointment and we were all paranoid that it was going to buurn down our apartment but apparently we bought one that shuts off after a while...thanks for that. Not sure why they say to unplug them...I guess anything can happen...

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