Tuesday, September 14, 2010

Hospital Survival Kit

Pontificated by Unknown
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Liz Stokes's avatar

Liz Stokes · 759 weeks ago

Hi Ronnie! Glad to see that the PICC line went iin O.K. and to hear that your PFT's are heading in the right direction. My daughter, Amy, is starting I.V's on thursday but, hopefully, she will be staying at home. She is getting married to her fiance Will next month and these were planned I.V's - to set her up for her big day and their honeymoon in Japan. However, she has been feeling rough for a few days and all the signs that she actually needs them ! Keep up the good work x
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Deana's avatar

Deana · 759 weeks ago

You're loved and blessed! We've yet to have a hospital stay. So, I watch your videos with interest and an eye to what the future can hold. Thanks for sharing your experiences in this way. The first video I pulled up on the internet after our son's diagnosis was you. I thought it was so awesome that you were so open and willing to share your experiences with CF. I still do. Thanks!

Can't wait to meet y'all in November at the CF Concert Series!
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rburkhalter 18p · 759 weeks ago

J's fev's on Monday at clinic were up from 54% to 59% and I thought that was good. You are rocking in the 60's! He has to go back on the 28th for another sputum culture. He's had one grow B.Cepacia and one not, so those 2 are off for further testing and a new one is ordered. I hope Mandi is hanging in there right along with you and getting to enjoy some of those snacks! I saw your big ol' bag of Skittles in your last post :) Looking forward to the next update and continued well wishes for a sooner than later release from "the hole".
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Laura · 759 weeks ago

Ronnie, happened uypon your blog from who knows where but have been "stalking" you and Mandi for a few months. Good luck to you both during this difiicult time. Mandi is a saint and obviously you were meant to tell your story to inspire others. You are certainly an inspiration to others with CF. I have known a few people who have not had your phenominal outcome but then again the treatments are not what they are now that they were 20 years ago,. You and Mandi are in my prayers every day, even though I do not know either of you, I find you both inspiring and so freaking humorous (love the YouTube vidieos - espcially Barbi Girl). Good luck in your stay are Hospital De Vacation (yeah right0 and I hpoe you are out lickety split (gee feel like I am 80 years old saying that phrase or at least born in the 50's)l.

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