Wednesday, June 20, 2012

There Will NEVER Be a "Perfect Time"

I got cut a bit short on my blog yesterday when Mckenna woke up from her nap, but I wanted to finish up about the themes that were running through my time in Boston. If you don't know why I was in Boston, or what the first major theme was as it relates to being successful in this (CF) life, please check out yesterday's blog.

Another common thread that tied most of us together weekend was the full belief in personal responsibility. I didn't hear people blaming CF. I didn't hear them saying it was "impossible" to get all of their treatments in. I didn't hear them give reason upon reason as to why they would get sick at times, if they knew they weren't doing everything possible that they could do to stay healthy. Instead, what I heard was peeps talking about "controlling what you can control" and "making sure that at the end of the day you could be proud of your effort". And hearing stuff like that was certainly like a sweet symphony in my ears.

I've always been a big believer in personal responsibility. Now, I'll be the first to admit that it hasn't always bled into my CF life, but in everything that didn't have to do with CF, I was never an excuses kind of a guy. There was a time when I fell for the classic CF tricks like "I don't have enough time" and "I can't possibly handle anymore treatments", but fortunately, I was able to see the error of my ways after a very close call and 52 days in the hospital. Since that "little" episode, I have taken up the flaf of personal responsibility in the area of my health as well. I knew after that crazy time in my life that all of the little excuses I was making and all of the tricks I was falling for were going to get me nowhere but dead. And frankly, dead is not where I wanted to be.

The thing is, if we wait around for the perfect time to give our max effort, it's never going to happen. I can still give you plenty of reasons why I can't exercise. I could go on for days about how inconvenient my treatments are. If I waited for a time in which I was not tired to exercise, or free from pain, I'd never see the gym.

Here's a recent example...I took the red-eye flight from Phoenix to Boston. I left Phoenix at 11:45pm and landed in Boston at 7:35am. I maybe slept for three hours on the flight. After arriving at the hotel, I did three things, and in this order:

1. I went to Dunkin Donuts to get some coffee
2. I did a treatment set
3. I went for a run

Now, was I tired? Yes. Was I not feeling on top of the world as a result of the flight? Yes. Did I want to run? Nope. There wasn't anything in me that wanted to run. So why did I do it? Because the days that I run, I feel better. Because I didn't run the day before. Because I said that I would when I left Phoenix. Because I want to live and live well. Because nobody else can run for me.

Point is, we often do things that we don't want to do. The thing is, it's doing everything to take care of ourselves that will put us into position to do more things that we want to do and do them well. With better health can come better life. I didn't fully believe that in the past. I thought I was having the time of my life back in the day, but little did I know that that life was slowly killing me. Now, with a refocus on health and personal responsibility, it feels like I'm living more than I ever have - and it feels great!! 

What about you? Are you doing everything you can do to put yourself in the best position to succeed each and every day?

Comments (16)

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i say with honesty that there are always areas of improvement for me. i take one aspect at a time and fine tune it. For example, with running. I started over a year ago of basically only exercising during official outings like a hike or something. But i realized the importance of regular routine exercise and began running, slowly and not very far. Today I am "training" to run 10k. With treatments, same thing. I did them when i "felt" sick and over the years have began to fine tune them, to get into a rhythm of routinely doing them. my compliance hasn't happened overnight but one small step at time. i agree with you Ronnie, we can't wait for the perfect time to approach us, we must approach it. there is no time like the present to take one thing and make one small step towards success. just like running, everyones pace is different but the fact that their running means they'll reach the finish line and feel amazing for doing so. thanks for always inspiring us. thanks for saying some hard truths, for our fate is largely in our own hands; CF or not.
1 reply · active 667 weeks ago
There are always, and will always, be areas that we can improve upon. The key is to always be working to identify those areas and then figure out what you can do to start filling the gaps. I love that you're training for a 10k and stepping it up on your treatments!!
I'm so glad to hear you had a good time in Boston. Had I been there for a clinic followup it would've been nice to say hi in person. I love getting my care in Boston because the medical community is so large in diverse. I try not skipping the gym, even when my trainer is out. I've had a morning gym session & then hit the road for a followup in Boston that afternoon......which even my doctors think is nuts. It makes for a long day but that's what hotels are for.
1 reply · active 667 weeks ago
I would have loved to meet up! Next time I'm in the area, I'll let you know :)

Good job on doing your best to not skip the gym!
I think for the most part I take care of myself, and do what needs to be done. However, there is more I can be doing, especially now that I have stopped taking some of my medications. I have to start running to get those deeper breaths in and heart rate up!

Thanks for visiting my blog. I wrote an entry today trying to explain my disease in more detail. I do have a few questions for you: 1. Have you ever met a girl with CF/other lung disease that had a successful pregnancy? I'm very stressed about this, and have been on the search for another girl's story. 2. How far/long do you run? I wasn't able to run yesterday due to heat warnings, which for me =not good. Do you prepare yourself in anyway before running? Like for me, I would probably do some albuterol treatments along with my flutter valve.

Thanks! http://myhappyhealthylife.wordpress.com/
3 replies · active 667 weeks ago
For some, running can definitely take the place of some drugs/treatments. I urge my fellow CF patients however to add exercise in addition to everything else they're already doing.

1. I know a ton of women with CF that have successfully gotten pregnant and had babies. I know you don't have CF, but since your condition has many of the same treatments, it could be beneficial to check out CysticLife.org. There are a ton of women with CF on there with babies.
2. My average run is in between 2-3 miles
3. The only thing I don't do is run on an empty stomach and I prefer to run directly after treatments.

Thanks for the questions!!
Thanks for your quick reply!! I'll definitely check out cysticlife.org
Awesome! Hope to see you there :)
The last two blogs that you have wrote are on point. I love your attitude to doing treatments, exercise, and your overall health. I think we all can improve on things in our daily life its just a matter of us not making excuses. One of my biggest pet peeves is when I hear people make excuses for things that they can "CONTROL". For us CF patients we can control a number of things and we need to hold ourselves accountable for this. Treatments, medicines, doctor appointments, exercise, etc. are our "Commandments" and we need to live by them. I will never say "Oh I wish I didn't do my Vest as often" or "I wish I didn't go to the Dr. so often" These are the things that keep us going everyday. For me I just think of the things that motivate me to be accountable everyday. I want to be here for my wife, our little girl on the way, and to witness all the other great things ahead in the future.
1 reply · active 667 weeks ago
That's a good point John - We certainly hear plenty of people regret not doing enough treatments, but it pretty rare of older CFers complaining that they did too many as a kid/teen/young adult!
Hey Ronnie. I watched you speak via UStream on Sunday in Boston. You did a fantastic job. I feel like mental health care/treament/monitoring is so important and vital in positive outcomes with CF, therapy adherence, and living fully in general. If one is struggling with depression and anxiety, it is probably the biggest obstacle that flattens the will to do anything for oneself. I kinda wished this topic was given more of a platform during the conference. I had also wanted to ask Ana and Isa how they cope with the ups and downs of transplant and CF. _Perhaps I could post some questions on the Power of Two website and they would respond....__I am post lung tranpslant 15 years. It is an amazing milestone in itself, but I have lived many years with 30% lung function due to chronic rejection. Regardless, you would never know my lung function is that low. I look healthy and have a fairly normal life, but I am not gonna lie--it is damn hard some days to find the motivation to keep going and comply with 'the routine.' I am comteplating re-transplant, but that is a difficult decision to make the second time around. In any case, you remind and inspire me to go back to pulmonary rehab! If you could help me get in touch with Ana or Isa, if that would be possible, I would greatly appreciate it...as well as any tips for staying mentally tough! I would greatly appreciate it. Sorry this turned out to be a bit long...
1 reply · active 667 weeks ago
Thanks for taking the time to check out the UStream.

Mental health is a hugely important factor in taking care of our (CF) life. I've found that more and more CF teams across the country are employing psychologists which I think is a wonderful thing. Thank you for bringing that up!

If you were to post something on the Power of Two blog or website, I'm sure they would respond. Tell them Ronnie sent ya. If you don't hear back, let me know!
I have been full of excuses as to why I haven't been doing any strengthening. Two weeks ago I made a public blog post to hold myself accountable and have been better but not great. TONIGHT I was going to bed saying damn I didn't work out today ... there's always tomorrow. Then I read your post and did my isometric strengthening stuff in the kitchen while my nighttime calories cooked. THANK YOU for the inspiration!!
1 reply · active 667 weeks ago
Very nice my friend! Doesn't matter when and where that you get it done, as long as it gets done!!
Well, this post was just the inspiration I needed tonight. I've been running for the last 3 days, and I used my, "I'm too tired to run," excuse just a few minutes before reading your post. Now, I feel the need to get on the elliptical and just push through it. What a great blog that I think many of us can relate to. I always love reading your posts as they fill me with determination to better myself! :)
1 reply · active 667 weeks ago
That's great to hear cyster!! Once in a while we all need a kick in the pants :)

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