Ever so often, I'll write a blog on here that will ruffle the feathers of some in the CF community. It's rarely, if ever, intentional, and my intent is never to upset my readers or make them feel bad. It's something that goes along with the territory I guess. I think an ex-preseident of ours said it best:
“You can please some of the people some of the time, all of the people some of the time, some of the people all of the time, but you can never please all of the people all of the time.” - Abraham Lincoln
Another thing that goes along with the territory is negative responses from some of my readers. These include, but are not limited to - personal attacks, attacks on my family, unfounded accusations and attacks on my faith.
Fortunately, the positive reactions outnumber the negatives ones about 100 to 1. I always keep that in mind when someone decides to take it upon themselves to try and "hurt me" because I "hurt them".
I'll tell you what the best medicine is though, it's getting responses like the one below to my blog yesterday:
Mama: Hi Ronnie, I just want you to know we are so grateful for you and how encouraging you are! [Son's name] is doing his treatment that he does not want to be doing and read your post about how you did not do your treatment like you should of and he said, "Man, mom, Ronnie is so encouraging!!!". Thank you sooooooo much !
Me: I'm so glad that he can find encouragement from some of my posts. My hearts desire is that others, the next generation, learn from my mistakes and don't make the same choices that I did. If I can change someone's life as a result of my stupidity, I'm glad to do it. Thank you for sharing that with me. Made my day!!!
Mama: Are you kidding, you just helped me stop nagging, I get tired of hearing myself, too.
That's EXACTLY why I do what I do. I've been very upfront about all of the bad choices I've made. I talked about the different tricks that CF can play that I fell for hook-line-and-sinker. I write because I hope that people like the Mama above and her son are reading. I hope that something I say can help them make better decisions than I did growing up. Simply, I hope that the next generation treats themselves much better than I did.
I'm often reminded by this quote of a fellow cyster in the community that I think put it best:
"I wanna help as many CF'ers as possible. It's therapeutic to think my failure could be someones success." - Michelle Matta
I love it. After hearing that, I just knew that she had to write a guest post on RSBR, which she did, here. I reminded her however that failure only happens when we give up and it's an outcome of deciding not to try. Both failure and success comes in many forms and is different for each person involved. Fortunately, I've rarely seen anyone in the CF community flat out fail!
Lastly, I'd just like to thank all of you who send kind notes, emails and encouraging comments. You keep me going. I'll continue to write as along as there are people out there who will read, and hopefully, leave this blog feeling encouraged, motivated and/or inspired.
I've come to realize this - The feathers of my generation may get ruffled while I encourage the next generation to fly higher and straighter at any cost.
Suzanne · 613 weeks ago
RunSickboyRun 96p · 613 weeks ago
Lindsay · 613 weeks ago
RunSickboyRun 96p · 613 weeks ago
Guest Troll · 613 weeks ago
Don't worry Lindsay I made sure to double check my grammar and spelling just for you.
THE TROLLIEST · 613 weeks ago
And in terms of spelling and grammar, some of us might type faster than we think, but let me assure you, my education could lap yours, even if you are running.
bp
Mandi Sharpe · 613 weeks ago
Mandi Sharpe · 613 weeks ago
Name · 613 weeks ago
Sara · 613 weeks ago
Alex · 613 weeks ago
RunSickboyRun 96p · 613 weeks ago
I've never denied the degenerative nature of CF (or life), however, I do, and I will continue, to make the case that CF doesn't always get worse no matter what and the stuff I choose to do each and every day will have either a negative or positive impact on my health.
Thanks for reading, and please, continue to comment!!
Traci Johnson · 613 weeks ago
Traci Johnson · 613 weeks ago
Ronnie and Mandi - I'm so glad to know you both and be able to call you friends. I know who you REALLY are...from personal experience and from Marisa. You are both loving, kind, helpful, inspirational and true examples of great human beings!
Incogneedles · 612 weeks ago
Guest Troll · 613 weeks ago
THE TROLLIEST · 613 weeks ago
Megan · 612 weeks ago
I do what is right for my guy....He hates CF with a passion, he will never see it as a blessing and I know the progression of this disease is real despite our best efforts. But I also know he lives an amazing life, there is nothing he can't do and we will just live for today- the today that God has granted us. He does his treatments but it certainly doesn't keep him from doing the things he loves. We believe in balance.
Guest Troll · 612 weeks ago
"One of many unsung internet heroes who are almost entirely misunderstood. Contrary to popular belief, many trolls are actually quite intelligent. Their habitual attacks on forums is usually a result of their awareness of the pretentiousness and excessive self-importance of many forum enthusiasts. As much as people may hate trolls, they are highly effective - their actions bring much of the stupidity of other forum users out into the great wide open."
Margaux · 611 weeks ago
I know you've taken some hits on your blog lately, so I wanted to reach out and tell you I appreciate all the time you take to write your posts and maintain this site. I know it's a labor of love.
I remember some controversy a couple years ago between some CF moms and older CFers who felt we were denying our children the truth by not telling them they would one day die from CF. I have never, and will never, tell my 4-year-old CF child that he's going to die from CF because I just don't know that to be true. I simply don't know what the future hold for him. All I can do is encourage him to live life to the fullest and to do his treatments every day.
CF affects everyone differently and everyone has different perspectives on it. I don't hold anything against these adult CFers because I know their life experiences are different then mine and they grew up in different times. I believe there is so much more hope for children born with CF today then there was 30 years ago. Therefore, we may see things differently. Such is life.
I may not always agree with your perspective but I don't believe your blogs are dangerous. The internet is filled with opinions and advice, and if I got offended over every post or article written that I didn't agree with, then I'd go crazy. I have enough sense to take what people say with a grain of salt and if I don't agree, move on. If people find your posts so dangerous, then they should probably stay off the internet all together because it's full of opinions and bad advice. You just learn to filter through it.
Keep doing what you guys are doing. You are an inspiration. XOXO
RunSickboyRun 96p · 611 weeks ago
Despite some negative feedback once in a while, we wouldn't change what we do for anything :)