Tuesday, August 6, 2013

Top Ten Tuesday: Popping The Pills

Man, it's been quite some time since I've done a Top Ten Tuesday!

Recently, or to be more specific, just over a month ago, I started a new clinical trial. I'm not able to tell you which drug is being researched, but I would bet good money that you have heard of it. It requires me to take a few pills in the morning and a few pills at night. Other than some trips to see the research coordinator for PFTs, weight, height, blood work and EKGs, it's super easy peasy. I've never been involved with a clinical trial that just required swallowing some pills. Usually they have involved inhaling medications which of course is more time consuming.

Anyway, here are ten things that I've noticed while taking the drug, or placebo, over the past handful of weeks...

1. Almost immediately, I felt like I had a bit more energy for everyday activities.

2. I've been able to push harder with increased stamina during my 45 minute "throw-up" class at the gym.

3. I usually run on the treadmill at a max of 5.0. Recently, I've been pushing it to 6.5 or 7.

4. I was unusually nauseous the first week of the trial. It has subsided some, but still present most days.

5. Could be a figment of my imagination, but I seem to sweat more (maybe because I can work harder).

6. My cough has decreased.

7. My sputum production increased the first 2 weeks and has now decreased from my baseline.

8. My lungs feel clearer.

9. I don't know my PFT results, but it feels like I'm able to take a bigger breath and blast out with less obstruction.

10. I'm more excited for the future. I've always been excited, but this could change some things.

There you have it. I'm sure there are more both good and bad things that I've experienced, but I wrote down the first 10 to come to mind. Keep your fingers crossed that others are experiencing the same positive effects that I have while taking this drug or placebo. Because, even if it's placebo, I'm very, very thankful for the results.

Comments (17)

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This is awesome Ronnie! Can you imagine if you'd had this med when you were super young before a great deal of damage to your lung tissue?? I'm excited for the future too! :)
1 reply · active 608 weeks ago
I'm uber pumped for the next generation of CFers!! This could definitely be a life changer :)
Keep being awesome brother!!! Hope to see you soon.
1 reply · active 608 weeks ago
Thank you my friend.
So exciting!!! We are counting the days for our two kids to be able to have access to the miracle med. :-)
2 replies · active 608 weeks ago
I just hope everyone is responding in the same way!! It's crazy to think that stuff coming down the pipeline is even better!
Wow, so amazing. It makes my heart sing.
Wow that awesome Ronnie. I'm glad to hear great things. I was supposed to be in a study that had very similar instructions as yours but I unfortunately had a change in weight/lungs before I began the trial. Stinks because I was accepted to be included in the study. I sure hope others are having the same results and I may get a chance to try it at another time. Tomorrow I am entering the hole for a few days to get my PEG replaced. Good Luck and Hope the Best for Everyone!!!
1 reply · active 608 weeks ago
Hoping you get a chance to hop on board too Chris!
That is AWESOME! So much so that this post brought tears to my eyes! I bet Mandi and McKenna's Top Ten list just grew by miles!!! SO much to be thankful for! Thanks for sharing, Ronnie :)
1 reply · active 608 weeks ago
We all felt really blessed before and all feel really blessed now :)
Rachel Olimb's avatar

Rachel Olimb · 608 weeks ago

This is so awesome to read!!! Except the nauseous part, that really bites. But the rest is super!!!
1 reply · active 608 weeks ago
I welcome the nausea if the results stay the same :)
This is awesome news. So in regards to sputum reduction could you give some sort of measurement in the reduction from your baseline sputum production?
1 reply · active 608 weeks ago
I'm not measuring it, so I really have no idea.
When you say slight increase of energy.....before you started did you just feel tired and run down all the time? Or you just feel your body has more stamina now?
1 reply · active 607 weeks ago
I didn't feel tired and run down all of the time before, but I feel less tired and less run down less often now. Make sense?

I also have more stamina during workouts.

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