Wednesday, October 9, 2013

Question from Reader: When Cystic Fibrosis Impacts Our Relationships

As you guys know, I love answering questions on topics I have experience in. I've been blessed to have had many great relationships in my life, and now, I'm able to call the most awesomest girl on the planet MY WIFE (still can't believe it)! We all know that cystic fibrosis can impact our relationships - both positively and negatively. This particular question comes from a fellow fibro who was recently heart broken when his girlfriend of 6 months decided that CF, and the possible implications and impacts of the disease, was more than she could handle.


Hello Ronnie,


I have cystic fibrosis as well. You have been a huge inspiration to me both physically regarding CF and spiritually. I apologize for not introducing myself sooner.


However, the reason I am messaging you is because I have a broken heart. My girlfriend of 6 months told me this evening that she could not see herself marrying me because if we had children (through assisted fertilization) I might die before they get a chance to grow up. We have had that discussion  before and she was devastated but I thought she had come to accept it. For the last month or so she has been saying that we need to break up and she would never give me a reason and her actions contradicted her words of "we need to break up" because everything she does indicates she still wants to be with me. Tonight she finally broke down and told me its because she doesn't want kids to grow up without a dad and also the fact that intro vitro fertilization (sorry if I misspelled anything, my knowledge on the matter is limited) is so expensive.


Is it wrong of me to expect her to be okay with the unsure future? I'm devastated.

I have come to you seeking advice because I know you have been through this, you have a beautiful daughter, and your life example (through my perspective on Facebook) leads me to believe that  you have the experience to help me.

Sorry to hear about this [name withheld]. I can only share with you my own experience and hopefully it can help a bit.

Very early on in our dating life, Mandi caught me off guard by saying, "I wouldn't marry you unless I was totally comfortable with being a young widow."

I was shocked that she would even think about this, but, that's because I don't have an "outsiders" perspective, and frankly, I'm a man. We men generally don't think for the future, we think for the present. Women on the other hand are wired a completely different way.

It takes a very special woman to commit their lives to a man with CF. Our life is simply different. There are sacrifices we have to make as a couple that no other couple has to worry about. And, there is the prospective of an untimely death that would leave them all by themselves for an undetermined amount of time.

So, to answer your question - Yes, it is wrong of you to expect her to be comfortable with being a young widow and/or a single mother. Most girls won't be comfortable with that. Is it a reality that it could happen? Sure. Are we planning on it? Absolutely not!!
Her worry about IVF being expensive is just noise and her grasping at straws. You can figure out the money part.

I'd be thankful that this is only coming down at 6 months into the relationship. I understand that the pain is real, the hurt is real and you're not feeling great, but it could have been much worse. Imagine if you were engaged when she realized this?
Sometimes, God places something on the heart of the girl who is wrong for us. The wrong girl needs to be out of the picture before the right girl can enter it.
One week before I met my future wife, my girlfriend and I of over 2 years broke-up. I wasn't happy about it at the time. But, looking back, I thank the Lord that He ended that relationship when He did.

Hope this helps and please let me know if you have any questions or comments.

Comments (9)

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As stated, it takes a really special woman to commit to a man with CF. However if you do ever find that person, hold on to them as hard as you can! You won't regret it!
1 reply · active 599 weeks ago
I don't want to come across as harsh or rude here, but from my experience it seems as if this girl/woman was trying to find an excuse to end the relationship. Like Ronnie said, the right woman will come along who is 100% ready to take on the role of a CF gf/fiance/wife/etc. Once you find her you'll understand why none of the other relationships worked. You've just gotta dig through the mud to find the diamond. I kind of went through the same situation. My boyfriend of 1 1/2 years is the SO supportive of me and my fight with CF (he even drove 5 hours in the middle of the night to come be with me in the hospital while I was admitted)! Sure, I dated a few people before him who were not as well suited for the role of CF bf/fiance/husband/etc., but I am very grateful that I went through those experiences because now I know what a true gem I have found! It all works out in the end, best of luck!
*any excuse, my apologies!
I am a CF wife, have been for a dozen years now. It wasn't something that I ever thought I would be, but it also was never even a consideration when I realized I was in love.

It's been tough, I have a lot more gray hairs that I care to admit, but I wouldn't change it for anything. It's made me a MUCH better person and taught me so many valuable life lessons at a younger age than most get to learn them.

I am so sorry that this young man's heart is broken, but the right girl WILL come around and when she does, you will know why this relationship didn't work out. There are bigger plans for his future.
I have CF and my ex-boyfriend and I broke up, because he told me he didn't want to be a single dad. At the time I thought he was a jerk and was being mean, now meeting my now boyfriend I couldn't be happier and he's been wonderful through all my IV and hospital times. Waiting for the right person is way more incredible than being with the wrong person and regretting marriage later.
I am a CF wife and although I am sorry you are hurting. because all Heart ache is awful, i hope one day you say "thank god for all those heart aches" As for me all those heart aches that I have gone through lead me to the place where I was when I met my husband! The way I feel about him I could never put into words, but I can say that we were made for each other. When the moment came to decide to take the next step, there was no hesitation, it just happened.It was like we took a quiet afternoon walk one day and he took my hand in his and six years later we still havent let go. Its not always easy and we have ups and downs. Sometimes fear takes hold of my heart, and some of the life lessons have come up a bit earlier than the "norm" but the norm was never meant for me or him. When I wake up to him every morning i think, I am so damn lucky! I married my BEST friend, he is my family! We may never have children and he may not always be around but no one else is guaranteed. What we do have, some spend a lifetime looking for. Thats real LOVE! hold out for the kind of love where your girl can't imagine life with out so much so that any future plan she might have made up for herself, seem empty without you. I think you should expect that! you deserve it.
1 reply · active 598 weeks ago

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