Friday, June 19, 2009
Please Take My New Poll!!
Just my two cents. Would love to hear your thoughts and see the poll results.
Thanks.
Labels:
CF,
Cystic Fibrosis,
New Poll
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Comments by IntenseDebate
14 people had something to say...:
I probably use 'Cyster' the most! :) But sometimes use CFer too... I think I'll stop using the CFer term just cuz as I was reading your post and I've thought of this before... What other diseases do we call those 'with' it?... I can't think of many?! ... a Cancer'er?... A Depressed'er... an MS'er? ...an IBS'er...a Diabetic?.. ok, there's one!
How about....a person who happens to be experiencing CF? :) or I've seen some abbreviations PWCF (person with CF)... yeah.. that's the one I dig...
Thanks for the input! You had me laughing out loud! I have another one (or two) Asthma=Asthmatic Rabies=Rabid Anemia=Anemic...I'm just trying to figure out the best and least offensive term. Problem is I'm not offended by anything. CysticLife or referring to me as a cystic or CFer actually makes me kind of proud. But then again, I'm strange :)
Ronnie
After reading that thread (ugh I hate going to that site, but that's another issue for another day), it seems to me that people who don't like the terms, for the most part, think that if they are used about them, they are being defined by their CF and only their CF.
Honestly, I think of it as something completely different. If you are willing to use CFer or Cystic in this "politically correct I can't hurt anyone" society, then to me it shows that you are comfortable with the disease and the person and see it as only a part of them... an important part, but certainly not something that defines them. Probably a small subgroup that uses it just because they are a**es, but you can weed those out by far more things then just saying cystic.
And also the people that get super offended about the "label" and correct people, I think they do more harm then good. If they get offended, or ask someone to use different terminology, it adds shame to talking about the condition and closes down a line of communication that was open.
Cfer all the way!
I like the term CFer the most, the people at my clinic refer to us at CF patients. Just like you I'm not offended by anything. It really does makes me proud to say I'm a CFer! I wouldn't be who I am today if I wasn't dx with it. Also I've met so many people that truely mean so much to me through CF, and I've met people who inspire me as well, just like you. =)
I like to think my Joshy is only a CF patient when he is at clinic or in the hospital. He could care less but for some reason I just don't like that term.
I use CFer because it feel funny in my mouth but I'm not sure if that is a good enough reason...
Cystic sure sounds pretty though..kind of like mistic
Okay i'm done :)
My vote - people are overly sensitive and you'll never get a consensus. :)
but i use CFer's because it's the shortest to type
I usually say CFer, but now that I am blogging and have seen people use cyster, I really like it. Very clever haha.
Anyway, I also wanted to say that I've checked out your blog and you are very inspiring. I hope to start exercising more and would love to run a mile. Glad I found your page!
Your Cyster ;)
Niki
I much prefer mutant for myself! - dbtoo
I think it's a regional thing, too. I had never heard someone say...I mean type, the word Cystic as a personal noun, as in "Are you a Cystic?" until you wrote that to me. It didn't offend me, I just had never heard it. I also think one choice (CFer) is a social word, and the other (CF Patient) is a clinical word. I wouldn't want me own doctor, for example, to sit down and say, "One thing about CFers..." I would be like WTF?
I much prefer to be called mutant. But if I have to choose, cystic works. Ronboy, want to meet for lunch one day? I'm over in mesa, but my job (when I drive in) is in snottsdale. pm me at cysticfibrosis.com -dbtoo
I probably use "CFer" more than anything. Or rather, "CF patient." I really have never used "cystic." I personally call my "cf friends" by their name, and then maybe just add in a phrase that says that they have CF (if it's necessary). I think "CFer" sounds cooler...if that makes a difference? Truthfully, like you, I don't really care. Depending on that person's opinion, they may be offended by certain terms. It doesn't really bother me, but I would definitely rather less offend someone if they prefer one term over the other??
Cysters for all my CF sisters and
Fibros for all my CF bros
or Cfer
to me Cystic Kinda sounds sickely or something.
I have always used Cfers, Nick and I just came back From Sunny Shores Sea Camp where it is mostly people with CF and that is what everyone said there..
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