Monday, October 12, 2009

Making The Hospital Feel Like Home

Ronnie's been feeling pretty awesome lately (can I get a WOOT WOOT?). He'll probably need a tune up in a month or so, but in the mean time, he's doing great. However, we know a few people that are in the Hole right now and people that have kids in the Hole right now, so I thought I'd make a little list of things Ronnie absolutely LOVES when he's in the hospital. I'm hoping it will give the people in some ideas...

Ronnie LOVES visitors. This seems like an obvious one. No one wants to sit in a room by themselves for days on end, especially when you're not feeling good. Ronnie's family is awesome about coming and spending time with him while he's in. I think this is the biggest reason he is so content while he's in the hospital. That being said, when he's first in and his body is all out of sorts from the meds, he often feels overwhelmed by too many people around.

Ronnie also LOVES snacks and meals from the outside world. While his appetite is often a little off when he first gets in, he quickly gets it back and loves to be fed food from the outside. He'll eat just about anything we bring in, but he loves Frosties, Brachs jelly beans, Peter Piper Pizza, Dunkin Donuts, and more. (Are there any foods you love from the outside world while you're in? Give us some ideas).

He LOVES entertainment. He's found many ways to keep busy. He watches entire seasons of TV shows (he watched ALL of the seasons of Lost within a matter of days one stay), plays hidden object games, plays video games (his cousins gave him this old school wheel of fortune game which is AWESOME), listens to old radio shows online (John Jay and Rich), and reads fellow CFer's blogs (of course!).

And last, but not least, he loves to be rubbed and massaged (I really wish I had a better way of putting it...trust me, I tried to think of an alternative...Let me explain!!!). Often times his joints feel achy, so he loves when I rub his wrists, knees, ankles, hands and feet. When he has a headache, I will rub his head, including his temples, top of his head and along his sinuses. I also rub his hand, the area between his pointer finger and thumb (my mom used to do that for us when we were kids. I guess there's a pressure point there and it helps with headaches). And lastly, after he's been coughing a lot, I rub his chest. This immediately relaxes him and soothes his sore chest muscles.

When you're in the Hole, what do you need or love? Do you have any weird hospital traditions? Share your guilty pleasures or simply what makes you feel at home.

Comments (24)

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Oh, I'm one of those people....in the hospital with a baby at home. Hard stuff!! But like Ronnie I believe in being in here when you have to be in here. His list is a good one. I was thinking about what I would ad....hmm.....well I certainly would ad a good book or two. Though this time around I am too tired to read. But often i would read a book or two while I was in here. I cannot live without my laptop. They have wireless here at the hospital now (a couple years ago it was dialup and that was a pain) I can use it also to watch movies, tv, play games, tv is movies, read blogs, and funny enough, I can use to to research drug information that has come to be helpful more than once in making choices for myself. I feel the same way about my blackberry. I can email my friends whats goig on without having to get my laptop out of my bag. Lastly, large amounts of snacks for home, comfy lounge wear, and my PORT. I am thankful for my PORT each time I get admitted.
1 reply · active 807 weeks ago
I'm still fighting the PORT idea. I still get PICC lines every time I'm in. Just being stubborn I guess!
Hi there,

This probably wouldn't work so well for Ronnie, but in our family, with 2 CF kids in the house ... every time they have an overnight stay in hospital, they get a big helium balloon from the gift shop to tie on their hospital bed. They love it!

And just to let you know, I've given you a blog award, it's waiting for you over on my blog ... http://beckyadrianserendylan.blogspot.com

Hugs!

Becky xxx
I always bring either decent room spray (the bath and body works stuff, not like, Glade haha) and/or a nice candle to ward away the "hospital" smell. Likewise, I always pack decent toiletries to use. I second Natalia on the books; I always go to B&N while I'm waiting for a room. Ditto on the laptop.

I'm actually the opposite of Ronnie, I generally prefer NOT to have visitors, with the exception of my parents; part of the "re-coup" for me is being able to have a few days where I don't feel like I have to be "on" for anybody, and can really focus 100% on me and what I need to feel better.

And good Japanese or Qdoba are always nice "outside" foods, although I have to say that the food @ UNC actually isn't that bad :o)
ooo seasons of lost are the best. great show. also "the office" seasons. those really help me out when i'm in hospital.
1 reply · active 807 weeks ago
I actually watched the first three seasons of The Office one stay also!
One thing I don't like in hospitals is the LIGHTING! So, I bring a little desk lamp with a warm light and something I can turn on and off by the bed w/o using those harsh flurescent lights overhead! Makes it feel a little homier and the nurses almost always comment how 'warm' it is in my room.... I would also always LOVE food from the 'outside.'
1 reply · active 807 weeks ago
I've never thought of that! Next time I'm bringing strobe lights and a disco ball!
Like Jessica, I prefer not to have many visitors. I try to embrace the isolation. Lol.

I always bring in a ton of books, laptop and movies to watch when hubby comes in over the weekends. I also try to plan some kind of home video type project, or something productive and creative while I'm locked up. I'm not always up for it once I'm there, but it's nice to know there's something fun waiting for me to do if I want. :)

Btw Ronnie, I like your Muybridge picts up top. You don't see that everyday.
Just got out of the hospital a couple weeks ago myself. They thought I had H1N1, but it just turned out to be a bad rhinovirus. I was on my feet fairly quickly though, and only had to stay a week. But ya, ditto on the outside food and watching tv shows on your laptop. There were actually a couple of times when I brought my playstation along, which killed a good amount of time. I agree with Jessica on the fact that I usually don't like too many visitors for the first days, but that changes as I get better during my stay and am feeling more up to entertain people.
2 replies · active 807 weeks ago
Dude, way to get up and out! Did your PFT's take much of a hit?
They stayed about the same which was good, but they're still not quite where I want them to be.
My four-year-old had his first tune up this summer. Actually, the main reason for his hospital stay was for surgery to have his tonsils and adenoids removed and his sinuses cleared, but he had to have a week of IV meds, due to risks of infection. The stay was tortuous for my son, because getting his IV line inserted was very traumatic and the med pushes hurt him every time.

But, several things made it easier. Friends and family came to visit. Many brought goodies with them and others sent care packages. A friend of ours made him a "treasure chest" full of trinkets, and he got to pick one out after every med push or hard experience. He got balloons. He got toys. He got some cool dinosaur puppets. The hospital had fun play rooms on every floor and he tried them all. He was there over the fourth of July and there was a picnic. He got to be in a promotional video for the hospital. Even my mother came to see him, one week before she died of pancreatic cancer.
The first time I was admitted, I brought my soccer ball and played in my room/in the hallway with a friend (Nothing stops me, not even an IV and the hospital). That really helped me, because I'm a caged lion when I'm stuck in the hospital. I usually don't feel poorly (lung functions are just down a bit) and I get frustrated.

I love puzzle books, TV, my iPod (I listen to music when having my PICC put in), MY PILLOW and MY QUILT (much better than hospital bedding), and usually my favourite stuffed animal (and I'm 18). My laptop is crucial for blogging and other ways of communicating when people can't visit. My bible is also a great comforter and a necessity when I'm admitted. What better way to calm the nerves than to read God's word?

Oh, and food. Lots and lots of food. Cookies, Chinese, chocolate... anything I can get really. Anything but the bland hospital food....

-Andrea
1 reply · active 807 weeks ago
Mandi and I go outside and play catch often!
I agree with someone's comment- that I like to limit visitors and am super picky. I like one visitor per day and the rest is ME TIME. But I'm a ME TIME sort of Gal.

One thing I like to do: all the beauty rituals I don't have time for at home: manicure, pedicure, weird facial mask thingies.

ALSO. Lots of sweets :)

I AM IN THE HOLE NOW!! Why are we all sick at the same time??!!
Katey Ballard's avatar

Katey Ballard · 807 weeks ago

And like others, my laptop is usually my entertainment for the day. Don't think I would make it without the laptop! Books, crossword puzzles, magazines!!! School work usually works itself into the schedule (or tries to).____Being a transplant patient, we are admitted to the transplant ICU & not the CF floor. W are not allowed to leave the unit...so that makes for a little more boring stay than most! But @ Children's, we could go anywhere we wanted in the hospital. At night, i would take walks around the hospital,
Amen to that! And WE WILL be blogging about that if we keep this awareness train rolling!

I look forward to hearing how your workouts go and the great affects it has on your PFTs!

Thank you for your kind words...

Ronnie
MiddleAgedLady's avatar

MiddleAgedLady · 807 weeks ago

I am also currently in the Hole. This was an unexpected visit, so I didn't get to implement my plans from the stay six weeks ago: to acquire some posters, wall art, drawings or otherwise portable wall decorations. The drabness of the walls seems to make all the sounds louder! I bring books, laptop, crosswords, my Bible study, little portable radio, DVDs magazines, bills to pay and art supplies. So far I haven't used much of any of these but have spent wads of guilt-free web-surfing time. (At home I feel guilty about wasting hours on the 'net.)
I have two kids with CF, and they look forward to hospital time because they know that they get special "mommy time." Life gets busy, and I rarely have time where something doesn't need to be done, but they know at the hospital, I am 100% theirs. I climb in bed with them and we watch whatever they want to watch. Every morning I buy a special coffee downstairs for us, and the snacks are always plentiful. We live an hour and 20 minutes from the hospital, so we don't get many visitors, but we don't mind that. It's all about us!
When Courtney goes into club med we make sure she has her yellow blanket some of her pj's the laptop so she can play games or watch movies her ds. She always seems to be getting coloring books and other art stuff why she is there so we always come home with more than what we left. We live 1.5 hours away so again we don't get many vistitors but that is ok in some ways cause thats is us time. After reading some of these other comments I have gotten some good ideas.

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