Wednesday, October 14, 2009

Blow The House Down! PFT Results Within...

Now I know that I usually give you direct workout related posts on Wednesdays, but due to some super exciting news, I'm changing it up a bit. The thing is though, that what I'm about to tell you has EVERYTHING to do with what working out has made possible.

Yesterday I had quite a busy CF day. Not only did I have a clinic appointment, but I also had my drug study appointment as well. For those of you who don't know, I am currently on the head-to-head TOBI vs. AZLI study. I was assigned TOBI, which was no big deal because I'm already on it and the only difference now is that I get paid to do it!

First was my clinic appointment. I've been feeling a little off the last couple of days and after describing my symptoms, the nurse was worried that I may have the flu (which was later dismissed by my doctor). I wasn't feeling all that confident for my PFTs (click to see video of old PFT test) but it's clinic and that's what I went there to do. I'll spare you anymore story and just get to the good news: I blew my highest FVC since 2005 and my highest FEV1 since 2007!!! My numbers were 83%/68% using the same module that I used prior to this year. When adjusted to this years module they were still 80%/67%. To see a full history of my PFT scores please click here.

The second part of this story is also quite interesting. Remember that I also had my drug study appointment later on that day. Well at the drug study appointment I also had PFTs and get this, they were 4% LOWER. In just three hours my lung function dropped 4%? No way. That tells me (at least) two things: PFTs are finicky tests that do not always produce completely accurate lung function numbers and they were also done using two different machines which can also produce different scores. I often "preach" not to put too much weight on your PFTs because of this exact reason. It's SO much more important how you feel. Chances are, if you feel great, your PFT's will reflect that. Sometimes when you feel like crud, your numbers will reflect that also. It's not always the case however, yesterday I wasn't feeling all the great and ended up having my highest numbers in YEARS.

For me, it's ultimately how you feel and if you can maintain your energy to take care of yourself. My last hospital stay my PFTs weren't down at all, but I wasn't able to exercise and run the way I wanted to. My energy and drive were zapped. But after 2 weeks in the hospital, my numbers rose just a bit and I was able to get out and start on my exercise program again. Since then, my numbers have been on the rise!

I really hope that this can serve as a source of inspiration to those of you who are just thinking about starting a running program or being more faithful with your treatments. Take a look around, there are a countless number of CFers who have shown that with a little bit of hard work and commitment you CAN make a difference in your lung function. But here's the deal, no one can do it for you. It comes down to a choice that YOU have to make for YOU....question is, are you in?

Comments (14)

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Congratulations!!!! That is AWESOME :)
Holy cow, Ronnie!! THAT IS AWESOME!!!!!!! Praise the Lord and those runs are obviously paying off!! Keep up the amazing work!
Wow, Awesome! Congrats Ronnie. Your hard work is paying off!
harmstrong's avatar

harmstrong · 807 weeks ago

woooo! i go for my breathing test next week! heres hopin my numbers are up too! congrats ronnie. keep on runnin!
Good going.
That is awesome!!! All that hard work is paying off!! :)

Jada
CONGRATS!

I once did two PFTs within a space of two weeks using two different machines... and got a 5% difference. The things do work FUNKAY sometimes. But either way, you blew great!
Congrats Ronnie! Soo proud of you!!
That is awesome! Keep up the good work!
THANK YOU to all for your nice and encouraging comments!!!! You guys help hold me accountable to keep on running and stay faithful with my treatments. So I have YOU GUYS to thank for these great PFTs. If you ever see me slacking, I give you FULL permission to kick me in my hiney! You guys are the best!

Ronnie
Starting on the AZLI long-term study again next week, fibro. Can't wait! I've been bicycling 30-min/day 3 days/wk. It will be nicer when it gets cold.
1 reply · active 807 weeks ago
That's awesome fibro! Let me know how that study goes....and GREAT job on the biking!
Congrats!

I just did a tune up and my lung numbers are still very low. Grr!!! Hoping for higher numbers in 3 months-- working and hoping.
Christopher's avatar

Christopher · 799 weeks ago

Hello, My name is Christopher, I was doing some research, because I just did a PFT, with less then satisfactory results... and I found your blog up lifting. I promise to be as bref as possible, I am currently working a Doctor and my U.S. Army Recruiter in obtaining a Medical waiver, they have granted me a wairver candidacy programe providing I stay med free for one year, which I have completed, and to present a PFT and a Methocholine Challenge Test to the brass taking care of my case, in the Dept of Defense. Although I dont have CF, I do have a similer breathing condition, known as Asthma. I know the two sicknesses are different, but for motivational and high spirets sack, I would love to hear any advice or tips you can share with me in getting a better PFT result? Like you said, Running BECAUSE my life depends on it, and apparently my future goals which I hold of the highest astem.

I sinserly remain yours
Christopher
Vol Fire Fighter

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