Monday, April 19, 2010

"Sliced Bread" for a CF Toddler

We have some near and dear friends, Jeremy and Rachel, who are the wonderful parents to an adorable little Fibro, Asher. They are a really fun couple and are always a good time to hang out with. We were fortunate enough to get to spend some time with them last week and catch up over dinner (half-priced appetizers to be exact). Now, I could write my whole blog about how wonderful they are, BUT that isn't the point of this post (see title). This post is about the COOLEST innovation they introduced me to about 6 months ago, one that just became available online to anyone who wants one...and has $19.50 plus shipping to spend :)

So here's the back story (and the buildup). Jeremy and Rachel were having a tough time when it came to treatments with little Asher. In the words of Rachel:

The tiny elastic strap to hold his nebulizer mask on his head was terrible. It would fall down the back of his head, or pull on his ears, or roll over the top of his head. Especially when he was really little it was a constant battle to keep the mask on his face.

They were super frustrated, and in their frustration, they began to talk to friends about the problem. One of their friends thought she could come up with a solution. After a few different prototypes, and several tests on the ever adorable "guinea pig", Asher, she developed the world's coolest solution: a fitted headstrap that ACTUALLY works. Here's what Rachel said about the end result:

We no longer have to sit and wrestle with him to hold the mask on his face. He sits comfortably in his gamer chair and does his treatment with his hands free to play with his trains, and soon video games, all while having the mask securely on his face. We've been using this mask holder for 8 months now and are so thankful for it every time it's treatment time.

Since the mask worked so well for them, they encouraged their friend to make them readily available to the CF community. The friend took their suggestion and set up a webpage on Etsy.

Click HERE to order or just to check it out.

Leave any comments or suggestions you may have for the mastermind behind the product...we'll pass them along.

**This is not a paid advertisement. I just happen to think it's the coolest invention and something that some of you may be interested in.

I was just informed that Etsy is having a problem and it says that the product is sold out. If you are looking to order one and are experiencing issues with etsy, please email meltnaz@gmail.com and she will respond to you.

Comments (12)

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Wow, I will be getting one of those in the near future. Right now he is content with me holding it.
Definitely a GREAT invention! Ordering one today!
CFMama and Jen, it's so funny that you would leave a comment because I've been following both of your blogs for a couple of months now. Your kids are so precious! This nebulizer strap has been such a blessing in our family, and I know it will be in yours too! Thanks so much for supporting it and helping us spread the word!
After reading your post, I followed the link to check out the nebulizer strap - and etsy says the item is sold out! Obviously there's a need and demand for this! :)
That is a great invention! Thanks very much for sharing it.
Heidi, thank you so much for noticing that! I've contacted my friend Melissa and she said she is having a few technical problems with etsy.

To anyone who is interested in ordering, please send Melissa an email at meltnaz@gmail.com and she will respond to you. I'm so excited for other people to benefit from her invention!!!!
I'm ordering one too. Thank you for sharing with us!!
Brilliant! My son is almost five and does just fine with the strap now, but I'll be forwarding this to our CF coordinator so she can help me spread the word.
Kati Pannecouck's avatar

Kati Pannecouck · 780 weeks ago

Awesome! Ordering one for my son today!
Rylee's Mommy's avatar

Rylee's Mommy · 780 weeks ago

Honestly, that's GENIUS!!!
I have 2 toddlers with CF and both are content with doing their treatments by themselves. However, I can agree that the elastics are a pain! They slide off forward (and the nebs go flying to the ground and medicine spills out) or it slides down the back of the head and then the mask fall off and everything is hanging around their necks. What an innovative parent and great idea!!
Hey ~ I have a question. I love this contraption! Today I just picked up a new mask. Mr. Bubble II, I believe it's called. But, I was wondering something. I noticed in this picture above that his mask is sitting a lot lower than on my son (age 3). Tonight when I used the new mask the upper part, that sits on the nose, seemed a bit tight. Just wondering if I was putting it up too high? When lower it dips below his chin and medicine escapes. Maybe it 's just depends on the child's anatomy? The new mask I picked up today is a bit more stiff, has a wider, more stiff elastic and doesn't slip. I highly recommend it. But, it did leave a little mark on his nose.

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