The Non-Hospital Update!!

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Blessed with Cystic Fibrosis and a positive attitude, it is my duty and passion to show the cystic fibrosis community that anything is possible through this blog that discusses the daily trials and triumphs that accompany not only life, but a CF life. RSBR is a hub for comfort, information, advice, encouragement and understanding. It is a place where no question is ignored, no accomplishment is too small, no goal is too big, and every comment is cherished.

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Tuesday, August 30, 2011

The Non-Hospital Update!!

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Jodi · 709 weeks ago

Good luck, Ronnie. I recall you mentioning some months ago that you would be going to "The Hole" for a tune-up before Mandi has Peanut. It sure does sound like now is perfect timing. It's not do or die, but proactive. Going now, gives you enough time to get the treatment you need, so that you will be in tip top shape for Baby Girl's arrival.

Take care of yourself, Ronnie (and Mandi). Take it easy, and before you blink you will be holding your little angel in your arms.

I know you already know how very blessed you are, but I know it's good to hear it from others. So, consider that me telling you.

Keep us posted!

Love you guys!

Jodi

3 replies · active 709 weeks ago

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RunSickboyRun 96p · 709 weeks ago

Thanks Jodi! Will keep you guys up to date with what's going on. Expect multiple video blogs :)

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Jodi · 709 weeks ago

Is this the same hospital Mandi will be delivering at? I want to say, "NO" just because it's so far; but "YES" because you are comfortable there. Either way, perhaps when you due your daily exercise it can include up/down or down/up from your floor to the L & D floor & a run/walk-by the Nursery a few hundred times? I am certainly not trying to be nosey, but I am wondering what can the hospital do that you can't do at home? For me, and my many health conditions, I have learned to do a lot of the crap myself. For example, I run my own IV antibiotics. So instead of having to be inpatient for 2-3 weeks to get all of them, I get the first 3-4 days (or until I am feeling well enough to go home) and then I covert back to J-tube medications where applicable and IV medications via PICC LINE (a PORT is in the near future it seems) where needed to finish the remainder of the medications. In fact, I had TPN and a PICC LINE for 11 months. Hopefully, this didn't come across as being rude or nosey. Praying for you, Mandi and Peanut! Jodi

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RunSickboyRun 96p · 709 weeks ago

I'm at my "home hospital" in Tucson but my actual home is in Chandler. We'll be having Peanut up in Chandler. As far as what I do in the hospital that I can't do at home, I plan on doing a blog about that soon :)

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Kellie Davenport · 709 weeks ago

Praying for your health as you are in the hole! You three are always in my prayers!! Lots of love to you all!!

1 reply · active 709 weeks ago

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RunSickboyRun 96p · 709 weeks ago

Keep the prayers coming Kellie - they are much appreciated!!

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kathleen · 709 weeks ago

Love your proactive look at life!!! Hope your time there flies by and just think - that much closer to having your own peanut by the time you get home!!! Prayers for all of you

Kathleen Gregory

1 reply · active 709 weeks ago

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RunSickboyRun 96p · 709 weeks ago

I think this time will either fly by or be like watching paint dry. Sure hope it's the former!!

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Lisa · 709 weeks ago

Glad your pfts weren't down too much! At least you'll be ready and healthy when Peanut arrives!

1 reply · active 709 weeks ago

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RunSickboyRun 96p · 709 weeks ago

That's the goal!!!

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Desiree · 709 weeks ago

Trying to get Madison pumped up to even go into the hospital for a tune-up can be challenging. I do hope this stay is as quick as it gets. Lots to think about and lots of time to journalize and keep us all focused on keeping our loved ones and ourselves as healthy as possible. Will pray for a super fast hospital stay.

1 reply · active 709 weeks ago

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RunSickboyRun 96p · 709 weeks ago

Thank you Desiree. At a very young age, I figured out that I like feeling better more than I hate being in the Hole :)