Tuesday, February 28, 2012

Cystic Fibrosis is Not My Challenge

**If you're here for the at-home workout challenge, pick some of the following exercises that I did at the gym and give them a try. If you don't have access to a gym, let me know which ones that you'd want to do from home, and we can alter it. Here's my workout:

50 Squats
50 Barbell curls
50 Tricep Extensions
50 Lat Pulldowns
50 Straight Arm Pulldowns
50 Box jumps
50 Face-smashers
25 Decline crunches with weighted ball
25 Pull-ups

We did this as fast as possible to get a cardio workout in while lifting these weights. Don't have to do it all, just pick a few and give them a try!

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I also wanted to take a few minutes to respond to Mandi's blog from yesterday. If you didn't get a chance to read it, click here. And be warned, it will probably make absolutely no sense to those of you who read it (as would most of the stuff that runs through my mind). Here we go!!

It's funny the little things you learn (or I guess kinda big) the longer you are married to someone. I feel like I'm pretty open with all of my thoughts and feelings (since I have so few ;), but Mandi may fight me on that one. Nevertheless, I was surprised with how surprised she was at my statement at our last bible study. I know she knows that I'm extremely positive, but I feel like my statements gave her even more insight into how my brain works.

Let me be clear: I understand how and why others categorize CF as a challenge, but for whatever reason, I just have never thought of it in that way. It may be semantics, but when I think challenge, I also think conquer or work through. Basically, something that has an end in site. From a very early age, I was comfortable and embraced the fact that I was born with CF and I would die with CF (notice I didn't say from CF, that is probably another blog for another day). CF is a part of me and it's not going anywhere. I never saw CF as a challenge allowed by God because CF is so intertwined within my life, that to call CF a challenge, would be to call my life a challenge. And I'm sorry, but I do not live a challenged life; I live a blessed one.

I see challenges all around me however. It's a challenge to be the husband that Mandi deserves. It will be a great challenge to be the daddy that Mckenna needs. I've always felt challenged to be the son that my mom and dad can be proud of. I challenge myself constantly in the weight room. Every time I lace up my shoes and go for a run, it's a challenge. Not a challenge to my health, but a challenge to my will. And most importantly, and my greatest challenge, is living such a life that one day my Father in Heaven can say to me "Well done, good and faithful servant".

See, all of those challenges I will hopefully accomplish with CF still in my body. And looking at those challenges, those would be present whether or not I had jacked up cells in my body. CF is a part of me that will always be there and I feel it's up to me to choose how I want to use that fact each and every day. To me, CF isn't a challenge, it's a reality that propels me forward and gives me the clarity needed to tackle my life challenges head on.

I guess what I'm trying to say is: Since I knew that I could never defeat CF, I decided that I needed to win at life. 

But winning at life looks different to everyone on the planet; How does it look to you?

Comments (16)

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I won't ever regret having CF. I firmly believe that having CF has helped shape me into the person that I am today. The person my wife fell in love with. Perhaps without CF it's possible I could be as happy as I am today, maybe I'd still have met my wife, maybe we'd still have gotten married ... I don't know and I don't care. Like you, I believe I've lived a pretty blessed life and while CF'll win the game in the end, I plan on scoring as many goals as I can and pushing the game to overtime : ).
1 reply · active 683 weeks ago
I couldn't agree more my man!
Vicki Melin's avatar

Vicki Melin · 683 weeks ago

What a wonderful attitude! Keep it up, Ronnie!
1 reply · active 683 weeks ago
Thanks aunt Vicki. When God allowed CF, He was smart enough to instill this attitude to go along with it :)
I love your attitude. You are a true role model for all of us with CF. I will sadly admit that I have my very rare days (once a year or less) where I get upset and think that having CF is incredibly unfair and a real burden. Then, I realize all of the blessings I have because of my CF, and I perk up again. I also feet that I will not die because of my CF. I see my challenge as living a full, Christian life every single day. Some days, I don't do so well. My challenge is not my CF. :) Thanks for being such a positive voice in our community!
1 reply · active 683 weeks ago
It's okay to get upset - CF can be a real burden. For me, since it's a burden that won't go away, like you, I focus on all of the many blessings in my life and figure out ways to enjoy them to the fullest!!
Ronnie, I am sitting here with tears rolling down my face because of your great attitude! I am the mom of a now 11 year old son. We found out he has cf when he was 3! They day that Joshua was diagnosed I said it would be for God's glory- God was moving me into a place that I was able to say that because if we had found about 3-4 months earlier, I would not had been able to say that. Now almost 8 years later- we found out on Good Friday- he is so healthy. He has never been in the hospital except with the initial diagnosis. God has His hand on Him and we are very thankful that he has not had to deal with the harder side of cf. He has had pseudomonas and cultured MRSA but both have gone away. He questions why he has cf and we tell him God has a plan- we have been able to see parts of the plan- Because of Joshua, the state of AR started newborn screening. We did not initiate it, it just happened that my daughter worked for a new state representative and we were in his office when we got the call to do the sweat test and he wanted to do something! Joshua brings joy to so many people- he is outgoing and certainly not shy about sharing his faith even with adults. I pray that he will see cf the same way you do- you have an amazing attitude and I am thankful for both you and Mandi for being so open about your feelings and thoughts. I have been "following' you two since before you got married and you both have been a blessing to me! thanks for all you do!
1 reply · active 683 weeks ago
Thanks for taking the time to comment Laura!! Joshua sounds like quite the stud and there is no doubt that God has great plans for him in this life. I appreciate you sticking with us throughout our entire journey together. We feel the love and support and it is cherished by us on a daily basis :)
Hey Ronnie,

We did that same Bible study about 2 years ago. Its a good one!

When we did the small group, I had the SAME exact thoughts as you. Weird. I got the same response to, although my husband wasn't in my group. They were all shocked. Don't get me wrong, in my younger years I thought it was a challenge, but I think part of it was being a teenager. I still have my moments of weakness. But for the most part, even when I feel horrible and laying in the hospital, I still see cf as a blessing.

People don't like to think this, but cf DOES mold you and shape you, its how you respond to the hardships and how you let it shape you. And the biggest factor is how you let GOD guide you and shape you through those hardships. When you have HIM as your guide, as your rock foundation...you are strong. With God by your side, nothing can stand in your way.

I also like to think if I didn't have cf, I wouldn't be able to witness to the unique groups of people I am able to. Like hospital staff and other cfers. God uses me to glorify HIM....how wonderful is that! I just feel as though I fail at it a lot, but it is something to strive to always keep improving upon.
1 reply · active 683 weeks ago
That's awesome Amanda!! I knew I wasn't alone in my thinking :) All we can do is continue to talk about it and maybe some others will join us over here on the dark side...or is it the light side? Anyway, thank you for sharing that with me - you're comment is SPOT ON.
Ronny, you are such an inspiration!!!! It is amazing!!!! i do love your and Mandi's
posts! : ) best wishes, san
1 reply · active 683 weeks ago
Thank you San! I appreciate you taking the time to read it :)
Hi Ronnie!
I just discovered your website this week and can't stop reading it. You and your family are amazing and truly an inspiration. I am the mother of two children with cf. Justin is 14 and Allie is 1. Big age difference I know! Making the decision to have another child was very difficult knowing the odds that it may have cf. We're so thankful that we made that decision and believe God will take care of them and give us the strength we need. I pray that they grow to have an attitude like yours and be thankful for all their blessings :)
1 reply · active 683 weeks ago
Thank you so much for stopping by to leave a comment! Is it kind of scary having another baby in the house?? :)
Hi Ronnie,

I love your last statement about not being able to defeat CF but needing to win at life - this is so profound and as a parent of 2 young women with CF it really brings a lot of perspective to not only their life but mine as well. Thanks so much!!! You really are an inspiration.
1 reply · active 683 weeks ago
Thank you Terri!!! I appreciate you taking the time to leave a comment :)

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