Tuesday, October 2, 2012

What a difference a year makes?

It's been almost a year since I've updated my PFT History on this blog. I have a good reason for not updating it however...I forgot to :) Well, I went to update it tonight armed with new numbers today from clinic, and was actually surprised at what I found. Surprised for a couple of reasons actually. First, as I already stated, I was surprised that it had almost been a year since I updated my numbers, and second, I was surprised to see what they were almost a year ago. To be exact, the last time I updated my PFTs on this blog was November 14th, 2011. So what were my numbers almost a year ago today? Well, I had an FVC of 88 percent and an FEV1 of 74 percent.

For those of you who have no clue what those numbers mean, I'd like to refer you to this blog for a quick course. If you'd like to see an older video of me doing a Pulmonary Function Test, click here. And if you skipped past those last two links but still what a super quick refresher here it is...

When you hear about someones PFT results you will usually hear two numbers FVC/FEV1. They are both given in percents like 88%/74%. The FVC measures how many liters of air I can take into my lung. When expressed in a percent, it's based on how many liters I should be able to take into my lungs given my sex, age, height and race. If I should take in 4 liters of air but I instead take in 3 liters, my FVC expressed in a percent would be 75% because 3 is 75% of 4. An FEV1measures how many liters of air I can blow out of my lung in the first second of exhalation. When expressed in a percent, it's based on how many liters I should be able to blow out of my lungs in the first second given my sex, age, height and race. If I should blow out 3 liters of air in the first second, but I instead blow out 2 liters, my FEV1 expressed in a percent would be 66% because 2 is 66% of 3. Make sense now? No? We're still moving on :)

I was excited for my clinic day because I was going to be able to do some PFTs for the first time since my hospital admission in late July. Since being discharged in mid-August, I've been working my booty off in the gym. I'm not sure what I left the hospital at, but I believe it was somewhere around 80%/74%.  I wasn't sure what I was expecting to blow, but for me, I've always been of the opinion that anything but down is good. I of course am always shooting for higher numbers, but I'll never be greedy if the "only" stay the same.

All three of my blows were consistent and they all felt good. My final numbers were 87% over 74%. I'd be lying if I said I wasn't even a smidgen disappointed, but that quickly dissipated when I reminded myself how great I feel. There are times when our numbers don't exactly reflect how we feel. That can be both to the positive and negative side. Sometimes our numbers are low, but we feel great and sometimes our numbers are high but we feel awful. Well today, my numbers were baseline (my average PFT that they expect) and I feel great! I'd say there's nothing to complain about!!

I was then even more delighted with my results from today when I went to go enter them in my PFT History. About one year ago today I had virtually identical numbers. But I thought are numbers were supposed to go down every year when we got to be old farts like me? I've told you that not everything you read or your doctor says is true right?

So what do I do now? I shoot for even higher numbers next time. I work even harder in the gym. I focus even more during my treatments. I make it a goal that in October 2013, while I'm celebrating my wife's 27th birthday and my daughters 2nd, my numbers are the same or higher.

All I can do is wake up every single day and decide that I will do everything possible to put myself in the best position to succeed.

If I can do that, as Jerry Cahill would say, I cannot fail.

Comments (10)

Loading... Logging you in...
  • Logged in as
Ronnie my man!! Congrats on those PFTs there is nothing wrong with those numbers. They aren't dropping which is key!! I think we all focus so much on the PFT numbers everytime we have a chance to blow. I know I do the same when I go to clinic. I suffer from the same when I blow a number that seems lower to how I actually feel. My doctor reminds me though that the PFT is just one piece of the puzzle. But I still get depressed about the numbers

So if you feel like a million bucks and your PFTs do not score like a million bucks there is no one to blame. Just remember as long as you are putting your best foot forward thats all you can do. I love your goal for October 2013 when you are celebrating birthdays do not forget to celebrate when your PFT numbers are the same or higher.

Keep on rockin my fibro!!!
1 reply · active 652 weeks ago
Congrats on the good numbers.
1 reply · active 652 weeks ago
Excellent explanation, thank you! We are not there yet (our little guy is just 18 months old and insurance denies coverage of infant PFT tests).
1 reply · active 652 weeks ago
Glad it didn't come across as a jumbled mess :)
I agree that any numbers that stay consistent are good numbers! A whole year without a decrease in your baseline is a whole year of keeping up with your compliance to me! Its TOUGH to get your numbers to increase, so I'm always happy with consistent numbers, because if ya can't go up, you might as well stay the same. and if YOU feel healthy at your baseline, that's all that really matters!
1 reply · active 652 weeks ago
Amen cyster! Hope you don't mind that I linked to your wonderful blog :)
Ale De Girolami's avatar

Ale De Girolami · 652 weeks ago

(First... sorry for my english, I'm from South America!)

Oh man... this post is inspiring!

1 hour ago I didn't know you even existed. I've found you through YouTube, when I accidentally watched your proposal video (really good and original by the way!)

Your video linked to this blog so I finished visiting this beautiful site. I didn't even know about CF, and I don't know how but in some way your optimistic message about wellness touched me. This is weird! I'm on my way of trying to start running and leave behind a sedentary type of life.

Well, I don't want to bore you. I never comment on blogs but I felt i had to do it here. I'd just wanna let you know that your messages can inspire anyone, even some random 25 year old guy from Argentina who was watching wedding proposal videos on YouTube. That is the beauty of the internet. Keep going on!

I've just started following you on Twitter (mine is @adegirolami)

Your blog is awesome!
1 reply · active 652 weeks ago
Thank you so much for making your way over to the blog!! I really appreciate you taking the time to read it and leave this nice comment. I'm always here for questions if you have any :)

Post a new comment

Comments by