Tuesday, April 16, 2013

Tough Answer

This is definitely a common concern with many moms and dads in the CF community. I actually wanted to post this exchange, because as you'll see, I don't have a great answer. Maybe you do? Please share your experience and maybe a helpful tip or two to this mama. I'll make sure she reads it!!

Hope you won’t find this question too personal to answer. 
We have a toddler with CF. The one thing that still bothers me about his diagnosis is the likelihood that he is infertile/won’t be able to have children without assistance. Given all the other stuff CF does to one’s body it just seems so unfair! And kind of random too actually. 
Just wondering how old you were when you realized that possibility and how you dealt with it? Was there something your parents said to you then that you appreciate now? I know we have a LONG time before this conversation comes up in our house but it's been on my mind for the past two years. Thank you! 

There is nothing ever too personal with me mama.

To be honest, I can't really remember an exact conversation about this topic as a kid/young adult. I have a feeling that how my mom handled ever situation that came our way is how she taught me to handle the subject of infertility - We'll figure something out. She had faith that things work out as they should and ultimately, we're not in control. Through it all, she has believed the "God is good". He would have been good whether or not I had children.

I was 19 when I got tested to see if I had sperm present. I of course had none.

I also don't think it's all that random of a "side effect" of CF. The only sure way to stop a genetic illness from "spreading" is to not bear/produce children.

Sorry I don't have a great answer for you. It was just never made a big deal because God was in control.

Comments (3)

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I, like Ronnie, can't recall a specific conversation about the possibility of fertility issues. However, I was always given information about CF at age appropriate intervals. So, I have known that fertility issues was a possibility since I've known about the "birds and the bee's". As a female those issues are different than males. But I can say I am experiencing them now but its less of a shock because I was prepared that this was possible and highly likely. I personnally believe that including your children in their health care at age appropriate junctures is best for helping eliminating the surprise and gives them lots of time understand, process and accept things. This also gives them confidence in understanding their disease and their self-care.

Great question and answer!
I agree with Ronnie , God is in control. Our son Lonnie was 20 when he was diagnosed. His son, Brandon will graduate from Texas A&M in May in Ocean Engineering( we are very proud grandparents,we helped Lonnie raise him, they lived in our home. It was a natural conception !!! Lonnie went home to his Heavenly Father at 40, during Brandon's 1st semester. Faith and hope will guide your path thru fertility issues. So I say never say never, God is in control !!
Hi
My son is twenty-five and was diagnosed at 4 weeks. We knew of the fertility issues. We dealt with it this way..
When he was small and said things like 'When I'm a dad I'm going to...' we would sometimes say 'you know how things can be tough with CF, sometimes it can be harder to have kids - you might need to see another doctor to help'. We didn't need to say this every time, and when it was age appropriate we might talk to him about friends doing IVF. Our thinking was we didn't want it to be a shock to him at adolescence and that lots of people may need assistance to have kids. Sometimes his attitude was 'not another doctor!' but mostly he was 'oh yeah, I do stuff that's hard' Good Luck

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