Thursday, March 12, 2009

My Medications

Zenpep 20's: 9 with meals 4-6 with snacks
Albuterol 3ml/Atrovent 2.5ml: 3-4 times daily
Pulmozyme 2.5ml: 2 times daily
Hyper-Sal 7% 4ml: 2 times daily
TOBI 5ml: 2 times daily (28 days on, 28 days off)
Cayston: 3 times daily (28 days on, 28 days off)
Inhaled Gentamicin 4ml: 2 times daily (28 days on, 28 days off)(No longer using)
Protonix 40 mg: Once daily on TuThSat
Azithromycin 500 mg: Once daily on MWF
Multi-vitamin: Once daily

Vitamin D3 1000mg: Once daily
Vitamin K 5mg: Once Daily
inCourage Vest by RespirTech: 4 x 30 minutes per day
Orkambi 200/125: 2 times a day
Aminocaproic Acid 500mg: 2 to 6 tablets daily
Metoprolol Tartate 12.5mg: Once daily
Dulera 200mcg: Two puffs, Twice daily 


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Comments (7)

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Ronnie, i was looking at your list of meds and i noticed that you and my 10 yr old Elliot who has cf(cf doesnt have him) are on virtually the same meds.we live in the uk and i am amazed at those familiar names.i will show him your blog and he will be friend requesting you on facebook when he is old enough! i would like him to see that someone else,Ronnie,who also has cf(once again cf doesnt have him!) takes these meds too and its okay.it sucks but its okay.xx
In Canada these medications are extremely common as well. My fiancé has CF and is on several of these medications as well! I hope all is well with you.
Samreen Salim's avatar

Samreen Salim · 678 weeks ago

Hey Ronnie!!may i ask why you take high dose of vitamin k??5 mg is very high dose :O
one more question>>do you feel your heart beat faster when you use albuterol and atrovent via nebulizer??
1 reply · active 678 weeks ago
I have frequent hemoptysis and Vit K has helped slow it down. Yes, I feel a bit jittery after albuterol/atrovent at times.
Samreen Salim's avatar

Samreen Salim · 678 weeks ago

ok thanks Ronnie :)
Hi, I am from Canada and my fiance has cystic fibrosis. He takes vitamin k+d vitamin because in Canada we cannot get just straight vitamin K in a supplement. I was wondering if your Vitamin K is through prescription or is it over the counter? We live close enough to Maine that we would be able to get it if that was the case. Thanks.
Samreen, Have you tried Zoponex? It works like Albuterol for my son but doesn't have the nervous effect.

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