Friday, November 6, 2009

The First Time I Did 7% (HTS)

Some of you may be thinking, "wait, 7% of what?". So let me explain...7% saline solution is a pretty new treatment in the CF circles. It's exactly what it sounds like, it's salt water in it's most basic form. They first became curious about this "drug" when they discovered that CF surfers in Australia had much higher lung function then there non-surfing CF counterparts. After years of clinic trials and research, 7% saline solution was born. Some of us refer to it as HTS (Hypertonic Saline) or HyperSal. If you're curious, I currently do two HTS treatments a day, but this post is about my first experience with huffing "salt water".

The first time I ever inhaled 7% was while I was in the hospital more than a couple of years ago. I remember the docs asking me if I had tried it yet and if I wanted to give it a whirl. They also said that it can be quite an experience the first time and recommended that I try 3% which is 7%'s weaker cousin. Being the big old bad man that I am, I of course refused and asked for the big gun. They told me to expect to cough a lot while getting used to it, which I responded to in I'm sure a very smart arse kind of way with, "That's the point isn't it???".

My next treatment came a couple of hours later. After sucking in the albuterol and atrovent it was time for the 7%. Oh. My. Goodness. I seriously thought I was inhaling sand paper. I couldn't take a deep breath without the back of my throat feeling like it was being attacked by the tickle monster. I coughed liked you wouldn't believe. I'm not sure how much of the HTS I actually inhaled because I spent most of the time coughing. I couldn't believe that there was another single CFer in the whole wide world that could stand to do that stuff. I couldn't be defeated though and I tried my hardest to suck that thick salt air deep down into my airbags. I'm not going to compare it to torture, but it surely wasn't Magic Mountain at Disneyland. Needless to say, my first experience with HTS wasn't exactly a pleasant experience.

Fast forward to today...like I said up above, I now do 7% twice a day and tolerate it just fine. It's just something that my lungs (and throat) had to adjust to. I actually didn't start doing it at home until earlier this year and sadly, I must admit, it was because of laziness. Prior to the pre-made capsules that they have now, they were distributing bottles of 7% that I had to access with a syringe and then shoot into my neb cup. After hearing so many fellow CFers swear by HTS and it's ability to improve lung function, I decided to bite the bullet and start doing HTS at home. As luck would have it, they just recently started using HyperSal at my pharmacy which comes in pre-made vials just like Pulmozyme or albuterol. So now I have absolutely NO EXCUSES.

Oh yeah, one more thing on my first experience with 7%. Remember how I told them to just give me the big dog because I was such a big old bad man? Well, after that first 7% treatment I requested that they bring the 3% instead. I just couldn't stand all of the coughing. But wait, that's the point isn't it?????

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Comments (17)

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I still hate HTS, but it does make one cough!
Zoe just started Hypertonic 7% a couple of weeks ago, she also nebs it twice a day! A few times she has said her throat hurt, but nothing major, just a little. She has done wonderfully with it and we are excited at the prospect of it keeping her healthier! :)
Take care!
Jada
Hey Ronnie,

We do 5% in Canada, I have to extract it from an IV bag until I get 5ml. I saw those little pre-made vials in the states and I think that is so neat! Traveling with the IVs bags is so inconvenient. I started hypertonic saline a few years ago and it has been great--the only time of day I am able to cough up junk.

I have also heard of mannitol and am curious to try that out, it is supposed to work the same way as hypertonic saline but be less irritating.
I also just started 7% a couple months ago. I've "tried" it in the past by never stuck with it. This time I am being very compliant and doing it twice a day. It makes me cough, but nothing crazy like I hear other CFers say. The first few times were VERY irritating, but I am used to it now. If I see a difference when PFT time rolls around, then I will keep up with it..but right now I am not so sure it's lived up to the hype.

~nicole
2 replies · active 804 weeks ago
Nicole- It certainly doesn't make me cough like it used to either, but I really do think that it helps at getting the mucus thinner so it's easier to get up and out. Have you felt or seen a difference in your mucus??
Yea, I guess you are right..it is thinner. I am just looking forwarding to actually SEEING some results with my PFT's..then I will know for sure.
Mike started hypertonic saline right after his most recent hospital stay, I think in April. I went to his pharmacy to pick it up for him the first time, and they were absolutely shocked that someone would inhale that at 7%. They had never heard of it, and had to make sure that they could provide it. He also does HTS twice a day. He mentioned to me recently that it helps him the most when he is especially congested. If he is pretty clear when he does the treatment, it really just irritates his lungs too much.
I hate Hypersal, it is the worst, not only does it feel like sand paper, but it makes my throat feel so scratchy, which i think is what causes me to cough more! I HATE IT! I have been on it for 2 years and although they say you get used to it, NO ya dont!
Tabitha E.'s avatar

Tabitha E. · 804 weeks ago

I love 7%... i do 7.5% in hospital though... once my mail order pharmacy (through which i get 3 mo supply of pre-made vials... thats all ive ever had) sent me a box of 10% for someone else... 10%!! I actually wouldnt mind trying it when im super concrete-y in my lungs... like if you had some vials of that around you know that would be nice. I didnt even know there was different concentrations till I was transitioning to my adult doc and they go you ue 7%?! haha
anyways.. saline is the only thing that makes me feel good even over pulmozyme (though I still use it) I have a mental thing where I feel like if I use both saline and pulmo my mucus wont know whats coming haha...
Tabitha E.'s avatar

Tabitha E. · 804 weeks ago

Part two:

as for mannitol, i talked to one cf'er who tried it and said she coughed and coughed and coughed and her pfts when up 10% in half hour... she didnt clarify if it was mucus cough or like itchy throat cough but she said she ended up taking cough suppresant b/c she couldnt sleep... i was thinking that all that coughing means its working right? and the coughing would probably slow down once you got so much mucus out... i want to try it...

PS: does everyone do xopenex/albuterol neb before saline? I feel like if I dont do xopenex the saline IS really irritating and not therapuetic... i know soneoen who doesnt do any airway dilators and I just think it makes a big differenece in effect of mucus thinners (hts, pulmo)
I love me some 7% Saline!! I'm not such a fan of being hoarse frequently, but I'm amazed at what a simple bit of saltwater can do for the lungs. It may not be the most pleasant experience, but boy does it help!
I much prefer plain saline. 7% does nothing for my lungs. I think the 7% tastes horrible and leaves my teeth feeling icky.
M calls his Satan percent lol..he hates it!
I swear by it..We have tested it and M is proof just how much it helps WHEN DONE CORRECTLY. He got me to try it one day and I really thought I was gonna die BUT the agreement was if I would do 1 whole vial without uttering a word or wimper then he had to do it like the Dr ordered. I won and M is staying healthy =D
If I were stranded on a desert island and could only bring one CF thing with me, it would totally be HTS. That stuff gets the gunk OUT.

I use it as a barometer for when I'm getting an infection too. If I can last through a whole HTS treatment without an all-out coughing fit, I'm doing well. When I get to the point where I can't even go a full minute before I have to cough, then not so much.
I have a hard time producing sputum on command. I can never bring anything up during clinic visits. They are going to try to induce me with some HTS next visit. I've had it in the hospital during the rest of my neb txs. It produced results one time (enuf for a culture) and after that, nada. I'd be willing to try it on a regular basis though.

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