Thursday, February 24, 2011
Thankful Thursday - This one is pretty obvious
Mandi's List:
I'm SO thankful that my God is one that is faithful and answers prayers. We have been praying that He would guide us through our IVF process, and man did He come through big time. A smooth diagnostic period, Ronnie having swimmers, and good little swimmers to boot, just the right number of embryos, and pregnant the first cycle. I am so thankful that this process isn't in my control (holy smokes, did you just hear this type A actually say that?!) and that I have a God who is so good, who's guiding this! I am so thankful to be blessed with this baby/these babies!!
I'm thankful for butt rubs. Any lady that has ever done progesterone shots (or anyone who has had oil-based shots before) knows what I'm talking about. Those suckers start to leave a lasting impressions after a few weeks worth. My butt has bit lumps and bumps of oil trapped (and some gnarly bruises) and it feels like heaven to have my loving hubby rub my sore spots to get some of the oil broken down and out of there.
I'm thankful for coffee. Gasp. "You're drinking coffee?!" you're thinking. No. I am not. And that is why I'm thankful for it. I miss it like mad right about now. As many of you know, weekend mornings while Ronnie is in the hospital are Dunkin Donuts mornings. And the smell of coffee in the morning makes my heart happy. Unfortunately I can't partake, but you better believe I'm going to pound the coffee in approximately 9 months. I am so thankful for this tasty drink. Have an extra cup for me this morning!!
I'm thankful for hospital stays. The hospital is always a nice time for Ronnie and I to relax together and hang out with his family. Sure we still work, and we can get a little cabin fever, but I always enjoy the quality time that hospital stays bring. I'm thankful for hospital traditions and fun experiences. We always leave with many, many good memories and some funny stories. I'm thankful that we can enjoy each other, and life, anywhere.
Ronnie's List:
I guess my first one's a little obvious, but I'm really thankful that were pregnant! We're approaching this cautiously optimistic as we know nothing is for sure until were holding our baby (or babies) in our arms, but for now we're just in the celebrate this miracle. We heard all along that this would be quite the journey and I'm just so thankful that our road was pretty smooth. I don't think it could have gone any better and we're just praying that in nine months or so the Sharpe clan gets a bit bigger! We can't thank you enough for your thoughts and prayers, we literally felt every single one of them.
I'm so thankful for the research teams out there working their butt off to make the lives of my friends so much better. As I'm sure you've heard, the pharmaceutical company Vertex just announced very positive results from their phase 3 drug study of the compound VX770. This little blue pill did very well and we're all excited for the future. It is shown to increase lung function, decrease exacerbations, increase weight and a host of other positive things simply by opening up the chloride channel on our cells. Now, I must point out that this drug is for a specific mutation that effects about 4% of our population, but they're very optimistic that this is the start to something great for the entire community! I'm super excited for my friends with the G551D mutation and I can't wait until this drug is released in 2012. Let's keep our fingers crossed that the FDA gets on the ball and approves this thing.
I'm thankful that after a week in the Hole I've turned the corner and improving bit by bit everyday. You never quite know how things are going here, but I'm confident I have nowhere but up! I'm going to start testing my lungs pretty soon here by running laps from a hospital and sprinting up the staircase. I'm hoping not spring a leak aka hemoptysis aka my lungs bleeding, but I figure there's no better place to do it than in here. I'll be taking PFTs on Monday and I'm very hopeful that they'll be up from a week ago. I checked in here with an FEV1 of about 60% and I'm hoping that by the time I'm out it will be in the lower 70s. Maybe I'll even shoot for 75%! Sure wouldn't hurt to try.
Labels:
CF,
Cystic Fibrosis,
Family Creation,
Hospital Stays,
IVF,
Thankful Thursday
Comments (10)

Sort by: Date Rating Last Activity
Loading comments...
Post a new comment
Comments by IntenseDebate
Reply as a Guest, or login:
Go back
Connected as (Logout)
Not displayed publicly.
Connected as (Logout)
Not displayed publicly.
Posting anonymously.
Thankful Thursday - This one is pretty obvious
2011-02-24T01:00:00-07:00
Unknown
CF|Cystic Fibrosis|Family Creation|Hospital Stays|IVF|Thankful Thursday|
Subscribe to:
Post Comments (Atom)
Kristi Bowers · 736 weeks ago
RunSickboyRun 96p · 736 weeks ago
Nicole Frame · 736 weeks ago
I am so happy for you and will continue to pray that everything goes smoothly for the next 9 months!!
Ali Martin · 736 weeks ago
Frances Johnson · 736 weeks ago
Now for my thankful Thursday....First I'm thankful for doctors that listen to parents. Matthew's lung function has been a roller coaster for the last few months and he has felt bad more often than good. SOOO I tomorrow at 6:00 am we go in for a bronch and another tune-up.
I am thankful for friends and family that jump in and help when we are going through though times.The ones that do little things like remind me to smile, give me a hug or hold my hand and even the prayers that I know they will say. All of it means so much to me.
JSD · 736 weeks ago
JSD · 736 weeks ago
1. How about decaf coffee, Mandi? I can tell the difference; well I take that back, my body can tell the difference. I had someone try to pass of "leaded" coffee to me one day and within 30 minutes I was vomiting and rolling on the floor because I had such a bad migraine. The person who gave it too me knew from what I had said that it was a trigger but I guess didn't believe me until she had to call 911, and watch me be transported and admitted to "The Hole (LOL)!" I think the hardest part was having to call me father and telling him what she had done.
2. What are the chances of having a baby with CF? Or by doing the IVF do you eliminate that possibility?
3. Do you two tele-commute for work? It seems like you have a lot of flexibility when Ronnie is in the hold?
I will continue to pray for you!
RunSickboyRun 96p · 736 weeks ago
Decaf coffee still has a little bit of caffeine in it and Mandi is a trying to avoid caffeine as much as she can. She's already gotten through the withdrawal phase and she is trying to stick it out!
We have a very very very very small chance of having a kid with CF. Mandi got tested for the CF gene by Ambry genetics which tests for the 1600 known mutations. If Mandi was a carrier of the gene we would've gone a completely different route.
Mandi is able to telecommute for work and actually has an office near the hospital that I stay at. We've definitely been blessed with our work situations.
Thanks for the prayers.
Mandi · 736 weeks ago
We don't have another beta test (our doctor said we didn't need one, if we wanted one we could, but he didn't think it was necessary). We just scheduled an ultrasound for March 14th. I guess our doctor feels like if you can't tell that much from betas, why continue to make your patient pay for them? Doesn't change anything if you know those numbers and you have a better idea of the viability and health of the pregnancy from the first ultrasound.
Elizabeth · 736 weeks ago
Ok, so ridiculously excited for you both. I know it's super early on and so many things can happen, but what a joy to share with each other on this journey. And slightly ironic that you are reading the test on the edge of the sink at UMC (I know those doors and sinks!). I look forward to reading 9 more months of updates, followed by an abrupt decline in blog posts as you face sleepness nights filled with the perfect cries of your mini-Mandi or mini-Ronnie (or BOTH!).
Hugs to you both and wishes for a strong tune-up.
Love, Liz M.
fellow CF wife and mother to a 2 year old CF-free daughter