Friday, March 11, 2011

That's the way...

...uh-huh uh-huh I like it. Oh wait, I meant to say "the cookie crumbles". My go around this time in the Hole has been a bit different for me. When I come into this place, I can usually count on slowly getting better (PFT wise) week by week until I'm all ready to go. After my disappointing results this week, it's evident that this will not be my typical stay. So far, I've taken PFTs three times while I have been in, and so far, the results have been almost identical. 58-60-58. I wish I could sit here and tell you that I know what's going on, but honestly, I'm kind of at a loss.

I've worked at reminding myself (as has Mandi) that I've been here before and not every stay in the Hole is the same. I think one of the problems is that my last couple of trips here have been short compared to my usual stays in the Hole. My last few stays I have averaged between 14-21 days whereas compared to the usual 30 that I was coming in at a time for the previous 5 years. Like I said, Mandi has done a great job keeping me grounded and focused on why I'm here: To feel better and do whatever it takes. Speaking of whatever it takes...We're going to try a prednisone burst for the next handful of days to see if it helps with the tightness that I'm feeling.

I hate that stuff. I'm seriously a different guy when I'm on it. I normally have one mood, and that's even-keeled, but when I'm on steroids; Watch out!!!! No, it's not that bad, but I have been know to have a not so long of a fuse. I'm just hoping that this time while be different and that I'm able to control my attitude when people are in my room :) I'm also hoping that it is the key in opening my lungs up and allowing me to take deep breaths. When I get to the point where I can actually feel a deep breath, I'm positive that the rest will take care of itself. Just keep me in mind over these next few days...and you might want to be thinking of Mandi as well :)

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I can relate right now about the bouncing back and steroids....prayers for you, Mandi and baby(Ies)!
Hey Ronnie, I hope the prednisone helps you...its a "miracle" drug for me when I am super tight....but I totally understand the "side effect mood swings" you can get. You do what you have to do, and just think how nice it will feel to be able to ge those lungs open and breathe deep!! Take care.
Continuing to press in in prayer for you!!!! Keep up the good work and we are praying the prednisone does the trick!! Praying for Mandi as well!
They usually have to give me predisone around Christmas time..... Christmas turns into Halloween cause the witch comes out to play..

I will keep Mandi and your family in my prayers.... But I can see that you're WAYYY nicer than me!!! :)
It is amazing the side effects drugs can have on our personality. I'll never forget the first time I saw John on Phenergran. He was so not himself. He was on a gurney in the ER waiting to go to a room. He began attacking the sheet because it had wrinkles in it. It was more than wrinkled, it was a mess from where he had been laying in it for 30 minutes tossing and turning. Still, the fact that it wasn't perfect freaked him out due to the meds. I hope you don't get in a fight with your bedding or anyone else who comes in your room. :) I guess we are used to PFT's in the high 50's, because that's John's typical range. He has gone so long with his job and school keeping him from being in control of his health. We are blessed that has changed for him now and sooner than later he'll be back on the right path to living a better CF life. Continued prayers for you and Mandi.

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