Wednesday, September 28, 2011

First Time Smoking Cayston

Just ran across this video as I was cleaning up my computer files and I thought I'd share. I find it funny how excited I was to try this med. I guess I'm just a CF med nerd. I still will say. that thing is shockingly quite!


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misslawrun's avatar - Go to profile

misslawrun 4p · 705 weeks ago

I love my e-flow! Mine is a little different to this one, it doesn't have the digital screen, but still does the job!
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lilcmom · 705 weeks ago

Thanks for sharing this:) I was wondering what Cayston was like:) I do lots of CF surveys that ask lots of questions about how much I know about Cayston. Now I know a little bit more, thanks to you:)
M
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Nikki's avatar

Nikki · 705 weeks ago

That was our reaction the first time Spencer did Cayston!!! So quite and it didn't take much time at all! We love it! =)
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matt smith · 704 weeks ago

hahahaha...firstly i would like to say, love the commentary by mandi...and the shocking reality that there is now a nebulizer that doesnt wake up the neighbour hood when you turn it on...ive got an eflow and after many mains nebulizers and portable nebulizers...the eflow is a godsend for us cfers, not only does it make no noise but is quick and effective in dispensing the meds you put in it and automatically turns off with the meds are finished...just love mine and would be lost without it as its also small so dont have to lug a huge case with me on my travels.
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Kari · 704 weeks ago

Can you use the eflow for Pulmozyme and TOBI or just Cayston? I can't believe how stinkin' quiet that little sucker is.....wow!
1 reply · active 704 weeks ago
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RunSickboyRun 96p · 704 weeks ago

I know that you have to get TOBI reformulated for use in the e-flow and I'm not sure about Pulmozyme. Have you checked on CysticLife.org for any info posted?

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