Tuesday, February 21, 2012

Different Hospital Stay

**If you're here for the exercise challenge: 30 minute walk, or 30 minutes of 5 minute walk 1 minute run cycle; 25 box jumps; 20 push-ups; 3 sets of wall sits. Also, I need suggestions from those who are up for the challenge. What's the best way to present the challenge each and every day. I want to do it in a way that works for you guys!!**

I'm baaaaaaaaaaaaaaaack!

You know what one of the best feelings in the world is? Your first shower after getting discharged from the hospital. I don't know if it's the confining space, lack of water pressure or ever-changing temperature - but hospital showers just don't compare to home showers.

Anywho, wanted to give you guys an overview of the strange hospital stay that I just had. I say strange because it felt different and was shorter than any stay in the Hole that I can remember for quite some time. I don't have any official numbers on this, but I don't believe that a 13 day hospital stay has happened for me in at least the last 10 years. And I've got to say; Man, it feels good!

One important thing to point out is that I didn't go in super sick. Rarely do I wait until I feel super sick, but this time I was even more proactive. Sure, I had increased sputum, increased fatigue, increased cough and darker mucus, but...as always, I gave them a call when my workouts just didn't have the results that they normally do. Even if I pushed it, it was so much harder to get through my daily routine. For me, that's a sign that I'll be in sooner rather than later, so instead of waiting for later (and inevitably getting more sick), I chose earlier. They say my baseline FEV1 is about 75% (up from 60% 3 years ago) and going into the stay it was at 67%. So as you see, I wasn't exactly "suffering". But my doc agreed, get in and get out before I get worse (I love those guys).

My first week in the hospital is always the worst. I think it's a combination of the antibiotics causing me to have an upset stomach as well as being sore and achy all over my body. This generally leads to more rest, which leads to little exercise, which leads to more achiness, which leads to less exercise, which leads to a drop in lung function. Get that? Almost every single time I'm in the Hole, my lung function drops the first week that I'm in there. It's not always a severe drop (usually not more than 10%), but always a drop nonetheless. Well this time, I actually had a 5% increase! Yeah I know, weird. But there may be an explanation...

I only felt like a truck ran me over for like a day and a half. Instead of the normal 7 days, the antibiotic blues were only with me for about 36 hours. We're not exactly sure why this happened, but I have my theory. Now, it could have been mental. It could have been the fact that there wasn't as much time to sit around now that I have a daughter. It could have been the fact that I had to go and walk around with Mckenna attached to me so she would go to sleep. I guess it could have been a lot of things, but my guess is...a switch in the antibiotic schedule.

I'm always on the same cocktail of drugs when I'm in the Hole. IV Vancomycin, IV Meropenem and oral cipro. They kept that exactly the same, but this time, switched the delivery time of Mero. Usually it's given 3 times a day for 30 minutes, but this time they gave it 3 times a day for THREE HOURS (they said more would be absorbed and not peed out)!! Yeah, I know. I was hooked up to my IV line for all day everyday pretty much (when you include my 2 hour Vanco sessions), but I really think that was the difference for me. Other than working out a time I could get unhooked in order to exercise, I loved the new antibiotic schedule (because I think it worked)! I could be proven to be wrong, but for now, I'll go with it.

With my antibiotic blues time being so much shorter, I was able to get up and out of bed quicker and onto my exercise routine faster. It also helped that I walked Mckenna around in her carrier for multiple hours per day! Since I was able to move around more, I coughed crud up daily and quite a bit of it. I think this all snowballed on itself and was the reason I had such a short stay. I'm already crossing my fingers and hoping that it works out this way next time!

So in summary, why do I think it was such a short stay this time?
1. Change in the med schedule
2. Shorter antibiotic blues
3. Hours of walking per day with a weight attached to my chest
4. Getting to my workouts sooner in the stay
5. Daily prayer that I would continue to get better :)
6. Not waiting until I was sick to go in

So there you have it! It feels so good to be home and back with my girls. I want to thank you guys from the bottom of my heart for your kind words of support while I was in the Hole, and you'll never know how much it they mean to me.

THANK YOU!!!

Comments (11)

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Rachel Olimb's avatar

Rachel Olimb · 684 weeks ago

So stinkin' happy that you're back home already! It's encouraging to hear that you may have found a way to make the drugs work more effectively for you! Wahoo!
1 reply · active 684 weeks ago
Heck yeah!! Thanks for the welcome home Rachel!!
I thrilled for you Ronnie!
1 reply · active 684 weeks ago
Thank you Sherry. Good to be back!
Made me laugh, your shower comment. I totally agree!

As we get older I think it's very important to not wait as long to have IV treatments. We must remember the long the infection is not under control the more damage it's doing to our lungs.

I like the idea of Mero going in over a longer time. That drug is harsh!

Sounds like you're on your way to 2 week stay......you have great incentive:-)
1 reply · active 684 weeks ago
Totally agree!! Can't wait around to get sicker :)
So glad to hear you are home. Have thought and prayed for you often the last few days, I can only imagine how much harder it is to be away from your family this go round. God is good, and I am thankful that it was a shorter and yet productive stay.

My husband and I were talking about you yesterday on the way to Rachel's clinic appointment. =) Then we come to find out at clinic that you were asked to speak at our next CF family day. (It is the day after our Rachel's Raise of Hope CF fundraiser, so the doctors were saying they might not be able to help serve food like they did last year...but when I heard you were coming-I didn't care=) !) I WAS SOOOOO EXCITED TO HEAR THIS!!! Omaha would love to have you!! I, in particular would love to meet you face to face (and your family if they can come)! You have been such an encouragement to me. God is good and I praise Him for the influence He has allowed you to have on soooooo many!

Anyway, enjoy your time at home with your sweet family! Keep up the hard work!=) Blessings, to you~
1 reply · active 684 weeks ago
I really appreciate the prayers, they were definitely felt.

I can't wait to get out to you guys in Omaha! Mandi and Mckenna will also be attending that day. It's the first CF education day that I've been able to bring my family, so you guys are in for a treat :)
It's interesting how different each hospital is. At ours we do continuous if antibiotics the whole time. So when I'm on mero, it is only stopped while I receive tobramyacin for 30 min and then hooked back up to mero. This last stay I was on Ceftazidime 24/7 and oral levequin once a day so the Ceftazidime was never stopped, only to shower. I'm glad you had a shorter stay and are feeling better!
2 replies · active 682 weeks ago
Wow! I had them rework my schedule so I could be unhooked for exercise mid-day.
We also workout everyday, we aren't hooked up to a pole, but a pump that we carry around in a bag. Just interesting to see the difference in centers.

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