Thursday, February 2, 2012

Thankful Thursday: Trips & Kalydeco

It's thankful Thursday time! We all have so much to be thankful for and we love to take this opportunity just to write down each and everything that comes to mind. Please take this time to share with us what you're thankful for as well. If you have a blog expressing your thankfulness, please share the link! Without further ado, here's what we're thankful for:

Mandi's List:


I'm thankful for great friends. This weekend we went and stayed at our friend's place in CA. Man, was it awesome. We sat around and talked, played games, explored their town, walked on the beach, and played with Mckenna. It was just so fun to get to hang out and spend some time together. What a blessing great friends are!

I'm thankful for my little snuggle bunny. Mckenna is not quite as snuggly as she was when she was first born...you know, the stage where all they do it lay on you and sleep? But she is still a little lover and when she's sleepy she's especially snuggly. I love everything about snuggling her.

And my BIGGEST one today: I'm thankful for my hubby. In case you didn't know, TODAY is Ronnie's 32nd birthday. The world is a better place because he's in it, and I can tell you without a doubt my life and Mckenna's life are so much more blessed, fun and joyful with him in them. I am so thankful for the man that he is, and very thankful for the woman he makes me! Happy birthday my love. Here's to many, many more great years to come!



Ronnie's List:

I'm thankful for safe (and screaming-bloody-murder free) travels. Mandi, Mck and I had a great trip out to Dana Point to hang out with Auntie Kirra and Uncle Tyler (and cousin Louis). We were worried that our little snuggle-bug was going to cry the whole way there and the whole way back, but much to our surprise, she slept most of the time both ways!

I'm thankful for the news from the Vertex camp this week. Kalydeco has the potential to change many lives in a great way, and many of those lives, I know personally. It was 10 years in the making, but for my fibros and cysters rocking the G551D mutation, it was well worth the wait. I'll be thinking about you guys as you adjust to a clearer set of air bags...now go run a mile!! :) 

I'm thankful for 32 years and running. There's a nasty rumor going around that today is my birthday (sometimes rumors are true I guess). The Lord has given me 32 unbelievable years so far and I am prepared to spend 32 more years here on earth if that is His Will. I've been blessed with the best relationships imaginable. Showered with grace. Forgiven of my sins. Couldn't think of a better birthday present.

So, what are you thankful for today?

Comments (20)

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Happy Birthday
1 reply · active 690 weeks ago
Thank you Sarah!!
Vicki Melin's avatar

Vicki Melin · 690 weeks ago

God bless the 3 of you & Happy Birthday, Ronnie!
1 reply · active 690 weeks ago
Thanks Aunt Vicki!!
Aimee Lecointre's avatar

Aimee Lecointre · 690 weeks ago

Sounds like we were 'neighbors' this weekend ;) I am five minutes from Dana Point. Hope you guys had a fab trip and HAPPY BIRTHDAY, Ronnie!
2 replies · active 690 weeks ago
Shoot, if I would have known, I would have carved out some time for coffee :)
Aimee Lecointre's avatar

Aimee Lecointre · 690 weeks ago

Next time!
Happy birthday, Ronnie! May you grow old in good health and continue to be an inspiration to so many! Thanks for making the effort to put yourself out there despite the many demands on your time and energy.
1 reply · active 690 weeks ago
Thank you for the kind note CFPT!!!
I just wanted to stop by and say Happy Ground Hog Day! (and Happy Birthday too) Hope there is lots of cake and ice cream involved. Enjoy!
1 reply · active 690 weeks ago
You know darn right there was!!!
Ronnie and Mandi...

We loved having you both and especially the little rug rat! Come back anytime.

Tyler, Kirra & Louie
1 reply · active 690 weeks ago
Thanks man! We had a blast and will be back soon :)
Happy Birthday Ronnie! Go for a run today to remind yourself of the blessing of life.
1 reply · active 690 weeks ago
I did Anna!! It was tough, but it was a nice birthday run :)
Happy Birthday, My birthday is the day after yours! I also am thankful for the new drug Kalydeco has been able to produce since my fiance has the G5518 mutation. Fingers crossed this gets approved in Canada in the next few years so if he ever needs it he can get it! :D
2 replies · active 690 weeks ago
**G551D
Happy birthday to you too!!!
Happy Belated Birthday!!! Here's to another 50 years at least - because if G551D has a seeming solution then the others can't be far behind. :)
1 reply · active 690 weeks ago
Thanks Erin!!! Another 50 years sounds pretty tiring though :)

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