Saturday, November 27, 2010

Thanksgiving 2010 (in pictures)

We had a great Thanksgiving celebration with family and probably both ate more than we needed to. Here's Thanksgiving 2010 in pictures:


We roll deep!!


Mandi looks focused and ready!


We almost ran out of food...


Feast!!


Here's 2 of 3 tables


Seconds.


Some of the desserts this year


The judges for the 2010 cousin bake-off


Hanging out afterwards


Where'd everyone go??? Video games!!

Thursday, November 25, 2010

What the _____?: Last Week's Results

A very Happy Thanksgiving to everyone stopping by to read this blog today. We all have SO MUCH to be thankful for!!

Here's the winners from last week's What the ______? contest!


1st: "Ronnie! I didn't mean to literally put your Big Girl Panties on!"
submitted by dawn

2nd: "Something old, something new. Something borrowed, Ewwwwwww."
submitted by Kelly

3rd: "Finally...a desperate housewife who isn't willing to share all "
submitted by Candice

tie

"Hey baby, will you be my TSA screener?"
submitted by Marissa

Wednesday, November 24, 2010

The (CF Full Panel) Results Are In!!!!

Alright, it's the moment we've all been waiting for...ok, Mandi and I. We just heard back from the nurse with the results from our CF Full Panel to see if Mandi was a carrier or not of the CF gene. Without further adieu, Mandi is....



And who doesn't like my Chinese pajamas?

Tuesday, November 23, 2010

Partial Results...Or Lack Thereof

*Mandi Tuesday? Doesn't quite have a ring to it - but I have a little update, so it's Mandi Tuesday :)

We caught wind that my carrier test (the full panel screen offered by Ambry Genetics) had results posted on Friday (get the back story here). This meant that yesterday (Monday) we surely should have heard something. After patiently waiting for all of 30 minutes after hearing the results had been posted, I called my doctor to see what they knew. They hadn't received anything. I proceeded to call Ambry. They told me they had "partial results" as they only had the results from the "first part" but won't have final, signed, official results until the end of next week when the second part is complete. And while the sweet girl on the other end refused (even after many pleas) to tell me the results of the first part of the test that were posted, just knowing they had moved onto the second part was enough to get my hopes up.

Watch this video to see why, hear my thoughts...and watch Ronnie attempt to make me cry!


We'll keep you posted! I'm sure with more videos of Ronnie capturing the "raw emotion" as he likes to call it. Looks more like capturing greasy hair and pimples if you ask me :)

Monday, November 22, 2010

My Thanksgiving Week Goal

With the holiday fast approaching, I've decided to set a goal for myself with the knowledge that this week is going to be crazy. I assume that it's pretty common to want to "shut it down" before the holidays, but I want to make sure that doesn't happen this week. It's happened in the past, but I just can't afford for it to happen now. So my goals:

- I refuse to miss any treatments. My middle day treatments always seem to get caught in the crossfire when things get busy. When this happens, I generally feel like dookie at the end of the day and my lungs get super tight. Even with that foreknowledge I'll still put off my middle treatments for some reason. Doesn't make sense. This week, I can't afford to do that. I need to stay on my game by staying on top of my treatments.

- I will go for a run everyday. My runs have been going well for quite some time now and I refuse to let this crazy week derail the train. Lately I've been running every other day to let my legs rest, but have been going on long walks or bike rides on my "off" days. This week, I want to run every single day. I want to run every single day to make sure my body knows who is in charge and even though he's not going to feel like lacing up his shoes and hitting the road, he's GOING TO DO IT!!

- I will not forget to remember all that I am thankful for. This shouldn't be too difficult to stick to as Mandi and I have made this part of our daily lives, but out of any week of the year, I want to make sure this isn't the one I forget to be thankful. If I started listing everything I had to be thankful, we'd be here until next year, but I definitely want to be more vocal about it his week. I want to make sure the people in my life know how thankful I am for them.

- I will not overeat on Thanksgiving Day. Now, I don't want you thinking that I'm watching my weight (although I probably should be); Thanksgiving Day and I have some history. I had my first ever full intestinal blockage in 2003 on Thanksgiving Day and it was not pretty. I won't go into details right now, but I'll try to write about it this week. Long story short, know when to say when when it comes to turkey.

So those are my four goals for the week. Feel free to call me out at anytime on any and all of these goals during the week. Drop me a note on here, message me on Facebook or email me at ronnie@cysticlife.org to make sure that I'm living up to my end of the bargain. If you, like me, struggle with sticking to a plan around the holidays, let me know so I can help hold you accountable as well!