Friday, February 4, 2011
Mandi's Eggs Are a-Cookin'!!!
Thursday, February 3, 2011
Thankful Thursday - The Sun is ALWAYS Shining
Wednesday, February 2, 2011
Only 6 Years Left?
Yeah rizzzzight!!! I can't tell you guys how bonkers it drives me to hear that 37 number thrown around the community. You know the number I'm talking about right? 37 is the predicted median survival age for the CF community (here in America) according to the CFF. Since I'm turning 31 today, it got me thinking, should I just enjoy cash in my chips and enjoy the time I have left? I of course say that in jest as I would NEVER say that (and mean it), but to highlight an attitude that still is present in many of my close CF circles. We get fixated on a number that's thrown out there and then think we somehow have to live down to it or in some cases, spend our whole lives trying to attain it. Can I just say this, screw that number and screw statistics in general. I've never bought into the hype before and I certainly don't plan on buying into the hype now.Tuesday, February 1, 2011
An Update from Clinic - It's Crunch Time
Yesterday, I had clinic for the first time since I got out of the hospital in mid-September. They'd like me to come to clinic more often, but with the frequency that I do clinical drug trials, I always have a pretty good idea of where I stand PFT wise. I don't know about all of you, but that's definitely the part I always look forward to come clinic time. I must add however that I'm certainly not doing what's best for me or best for my clinic. It's obviously a better situation if they're able to track me more closely and if you want to get down to the nuts and bolts of it - it's better for the center. Every CF clinic relies on outside funding to stay afloat, so the more patients they treat, the more money they get. If I'm not going to clinic, I'm not getting counted, therefore they don't get all of the money they deserve (do you see where this is going?). If they don't get the money they deserve, it not only affects me, but all of my great friends, including the doctors, at my clinic. Get it? Got it? Good! Monday, January 31, 2011
The Beginning of the End
Saturday, January 29, 2011
Rondi's Reviews: 127 Hours
Last night we went to see 127 Hours - a movie based on one man's story of survival. Mandi is relatively easy to please when it comes to movies; while I like to pretend I'm Siskel and Ebert. Here are our thoughts on the movie....be sure to watch the trailer first!
Thursday, January 27, 2011
Thankful Thursday - It's good to be home
Tuesday, January 25, 2011
A Mental Break
Monday, January 24, 2011
Updates from the Couch Potato
I figured I'd give a little update about what crazy things we've been up to. Sunday, January 23, 2011
Daycare or No Daycare?
I wanted to share this blog with all of you from Jen over at http://groettumfamily.blogspot.com/. She does a great job explaining her position on a much talked about issue that face CF families. Without further ado...
Why We Don’t Do Daycare (at other people’s houses)
** Before I even start, please remember that this is my blog, my opinions, my life choices…you may not agree with me all of the time (or ever!) but this is why we choose to keep Gavin home and not put him into a daycare. You may have a different opinion, and that’s all good, but like I said…this is my territory :)
So here we go, in no particular order…
First, we live in the frozen tundra.
If you were to look outside this morning, you too wouldn’t want to leave the house. We had gotten more snow overnight, and the wind was blowing like crazy…not exactly a comfortable atmosphere to hang out in. As much as we like to be outside year round, Mother Nature keeps us inside the majority of the winter season (winter here is often 5 months long) which means that our gross, sickly winter germs are contained in our homes/offices etc, making it much easier to get sick. And honestly, if you don’t live in a state where you have difficult winters? You just don’t get it…not trying to sound rude, but it’s the truth.
As much as I clean & sanitize, I can’t clean everything or everyone so obviously we’re going to get sick…but kids are walking Petri dishes, they pick their noses and immediately walk up to you and give you a high five. Yes, Gavin still gets tons of interaction with other kids. Our neighbors come over and play, we head to the mall play area, local indoor playgrounds, the grocery store play room, the jump house etc (and no I don’t walk around with hand sanitizer he plays just like any other kid)…but if I know that there is a major virus moving around town? We stick around the house.
Yes, I am opening a small daycare in our house. But that’s just it, it will be in my house. I know that when I say I clean I actually clean. I am constantly washing blankets/sheets/pillows and even his stuffed animals. I don’t have potted plants around the house (except for two very small ones in our kitchen window). I go through many of his toys once/twice a weak and wipe them down with disinfectant. I am in control of what illnesses/sicknesses I allow kids to have when they come into our house (minor colds/tummy aches etc are a-ok) and I have the control in sending kiddos home. I am able to be with Gavin through any extra treatment sessions he needs when he does get sick. To me there is a big difference in allowing your kids to be around some germs to build up an immune system, and sticking your child in a germ-filled daycare at 6 weeks of age.
I am at the age where nearly half (if not more) of my friends have toddlers/babies, and almost all of those kids are enrolled in daycare. I cannot even count how often those kids seem to be sick, and CF or no CF, that’s just not something I am willing to deal with. I also cannot count how many parents have talked with me, or visited our home, and discussed how disgusting some of the local daycares are, yech! In general, most home daycares are not clean enough to mystandards. And many friends have told me that they wish they could afford to stay home (ahem, you probably can if you aren’t a single parent making the only income, you just have to make a 180 change to your current lifestyle, but more about that later) whether their child has CF, another disease, or is completely “healthy.”
And honestly, after 2 or 3 kids many people need to step back and see if they are even coming out “ahead.” If you realize that after the cost of daycare you are barely making more money than if you stayed at home, then stay home! (if this doesn’t affect your health care). Your children are young ONCE, and if its the difference of a couple thousand dollars a year…skip that vacation, go out to eat monthly instead of weekly, stay away from the shopping mall, etc and enjoy your kids! They will never look back on their childhood and wish that you had spent more time at work.
Our CF team also informed us that keeping a child out of daycare, and healthier for the first three years of life (if that is possible for a family) has proven that the kids often “do better" health wise for longer, obviously this is not true for every child but it really does make sense to me. This is not saying that children who are placed in daycare will not do well, it is just saying that statistically, those that aren’t tend to be sick less & hospitalized less.
Secondly, is the fact that children learn more in their first two years of life than they will in their entire lifetime.
Gavin is about three weeks away from turning two and he can:
- recognize nearly 1/2 of the letters in the alphabet
- count to ten (and sometimes beyond) like it’s nobody’s business
- speak rather “fluently” – I have had several people tell me that they didn’t believe he could actually speak as well I say he can, until they saw it in person
- knows all of his colors and shapes
- has an insane memory for his age
- is extremely polite, he is constantly saying please, thank you and you’re welcome without being prompted to do so (if he doesn’t say please, he doesn’t get it!)
I 100% believe that he has achieved all of this so early because of the one-on-one attention he has received from day one. And not just from me, but from the family members/friends he is surrounded by. We read books for hours (seriously) every day, he has discovered that all of those letters at the bottom of the page make up the words to the story I am reading. We rarely watch crazy tv shows for kids, if we have the tv on we stick to PBS. Shows like “Super Why” and “Sesame Street” have gotten Gavin extremely excited about learning and he thinks he’s pretty cool when he answers questions that are far beyond his (almost) two years. All of this has made me realize that once I get this small daycare of mine up and running, that we will spend a major chunk of our day “learning” and not plopping them in front of the tv/just letting them run crazy because I’m worn out. Embedding as much new knowledge as possible into their little minds while they still think “school is cool” and aren’t yet complaining about that daily routine :)
Thirdly, we are willing to make sacrifices.
Sometimes pretty big sacrifices.
One income family means: no vacations, extremely rare fancy dinners/dates out on the town, never buying items that aren’t on sale, making what you have work rather than running out and buying new, making that dollar stretch as far as possible…and being ok with living that way. To us, being able to personally witness each of Gavin’s early accomplishments was far more important than having the nicest house, the most toys…the fancier lifestyle. Sure, having a large house would be nice…but we’re ok with being cozy. Sure, a vacation away from the snow would be nice…but for now we better enjoy snowshoeing and skiing, because the beach isn’t happening anytime soon.
I have also been doing tons of research on couponing. I do not plan on become a crazy coupon lady, but I have spent several days on different websites reading about other SAHM (stay at home mom) techniques. The biggest mind changer for me? Hearing a lady simply say, “A coupon is freemoney.” And I am not just talking about grocery store coupons. But also coupons for restaurants, theme parks, weekend adventures etc. Saving money, buying second hand, and recreating new items from old ones, are just some of the reasons we can “afford” for me to stay home during the day. On a different day I’ll share some of my newly learned “tips.”
In all, our choice to keep Gavin out of daycare goes far beyond him having CF and goes beyond any other “health reasons.” No, we are not the crazy parents walking around with hand sanitizer and pulling him away from every child that has a runny nose…if anything we’re too relaxed about his “interactions” with germs. Yes, Gavin’s CF made our final decision that much clearer. Yes, I choose to say that Gavin “cannot” be in daycare, because in my opinion? In order for him to continue to succeed (and again, not just talking about his health) at the rate he has? Daycare at someone else’s house is.not.an.option.
Lastly, until you have children of your own you have absolutely no right in judging another parents decision to place their child in daycare or to keep them home. Sure, you can have an opinion, but trust me…it’s better to keep it to yourself until you also have your own :) It is very easy to have “all the answers” of parenthood, until you hold that baby of your own for the first time.
Friday, January 21, 2011
Stony Brook Family Education Day
Thursday, January 20, 2011
Thankful Thursday - Support the Freezers?
Wednesday, January 19, 2011
San Francisco Scare
Tuesday, January 18, 2011
Freak Things Happen
So today Mandi and I were running around to doctors appointments, relaxing and, of course, observing MLK day the best that we could. Earlier in the day we had a fertility appointment to make sure that Mandi's eggs were still looking good and to go over how to give the shot that looks like a horse tranquilizer (I'm kidding, it's not that bad). We were also able to sit down with the doctor and go over some details about the whole process, which I'm sure we'll get into with you guys soon here on the blog. Just as a teaser though, stuff like how many eggs to fertilize, how many embryos to "put back" and what to do with the embryos we don't use at the moment. So as you can guess, it was quite the conversation, but we'll save it for another time.Monday, January 17, 2011
The Secret to a Clean House: The 10-Minute Tidy
Saturday, January 15, 2011
When Life Gives You Lemonade
Friday, January 14, 2011
Baby Batter Appointment
Thursday, January 13, 2011
Thankful Thursday - Mommas and Gyms
Wednesday, January 12, 2011
Tuesday, January 11, 2011
That's the Way It's Supposed To Feel
That describes my attitude towards CF for much of my life. Whether I was short of breath, had lung pain or a bloated stomach, my response was, "well, that's the way it's supposed to feel". As I've "matured" in this CF life, I've realized that I have much more control over this disease than I used to give myself credit for. You see, maturity isn't necessarily what you know, it's what you do with what you know. I've always been up on the latest medicines and treatments offered to the CF community, but I wouldn't be the first in line to take advantage of the "latest and greatest". It's certainly not the case that I didn't care, but in a sense, I didn't want to rock the boat. I felt fine. That's pretty common for us isn't it? Feeling fine. We figure that if we're not feeling horrible, we're ahead of the game. We get used to feeling "just ok" and that quickly becomes our normal while feeling "pretty good" becomes the peak of which we think is possible and feeling "awesome" seems out of reach.